Finance Score: -1

Governance Score: 8

Support Score: 4

Liabilities <10%: +3
Large legacies income: +1
Multiple Deficits: -2
Fundraising costs high: -3

12+ Trustees: -1
Good trustee age range: +3
Dynamic board: +3
Gender balanced board: +3

Grant maker support: +4

Overall GiG Score: 11

BRITISH EPILEPSY ASSOCIATION

Exists to improve the lives of people affected by epilepsy.

Analysis by Giving is Great

Positives:

The charity has received backing from multiple prominent grant makers recently
This charity has a robust balance sheet
This charity has received considerable income from legacies in recent years
The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Regulatory & Governance issues to consider:

There are 16 trustees whereas the Charities Commission recommends a maximum of 12

Financial issues to consider:

On several occasions in recent years income has been less than spending
Fundraising costs are high relative to funds raised

Established: 60 years

www.epilepsy.org.uk

epilepsy@epilepsy.org.uk

01132108800

Charity Commission for England and Wales

Tweets

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22		£5,308	£3,512	£1,795	£1,333	£5,269	£3,692	12.6	64	500
31/12/21		£3,315	£3,300	£15	£1,154	£3,672	£3,012	11	63	500
31/12/20		£2,395	£3,126	£-731	£1,011	£3,445	£2,733	10.5	70	200
31/12/19		£3,415	£3,746	£-331	£1,193	£4,362	£3,712	11.9	74	850
31/12/18		£3,719	£3,167	£552	£998	£4,358	£3,492	13.2	70	800
31/12/17		£3,188	£2,914	£273	£1,002	£4,065	£3,368	13.9	65	0
31/12/16		£3,758	£2,709	£1,050	£875	£3,513	£2,754	12.2	60	0
31/12/15		£2,956	£2,649	£306	£963	£2,313	£1,724	7.8	54	0
31/12/14		£2,534	£2,765	£-231	£1,001	£2,015	£1,414	6.1	55	0
31/12/13		£2,382	£3,458	£-1,076	£1,183	£2,185	£1,486	5.2	62	0
31/12/12		£3,068	£3,565	£-497	£1,325	£3,016	£2,129	7.2	57	0
31/12/11		£2,849	£3,243	£-394	£988	£3,309	£2,405	8.9	58	0
31/12/10		£3,041	£3,099	£-58	£905	£3,778	£2,778	10.8	57	0
31/12/09		£3,378	£2,989	£389	£1,142	£3,635	£2,521	10.1	54	0
31/12/08		£3,384	£3,524	£-141	£1,472	£3,184	£2,025	6.9	55	0
31/12/07		£3,198	£3,488	£-290	£1,331	£3,668	£2,344	8.1	60	0
31/12/06	*	£3,522	£3,418	£104	£0	£0	£0	n/a	0	0
31/12/05		£3,593	£3,050	£543	£0	£0	£0	n/a	0	0
31/12/04	*	£3,043	£2,703	£340	£0	£0	£0	n/a	0	0

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Financial Ratios

Fundraising Costs/Relevant Income: 26.4%
Fundraising Costs/Total Spending: 38.3%
Senior Staff Costs/Total Spending: 6%
Highest pay band: £90,000-£100,000
Liabilities/Assets: 5%
Liabilities/Income: 5%
Unrestricted Funds/Total Funds: 70%
Reserves/Spending: 12.6 months
Net Current Assets/Spending: 8 months
Quick Ratio: 2.8

Asset Split ?

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

How it operates

Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Guernsey, Isle Of Man, Jersey, Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People
Elderly/Old People
People With Disabilities
The General Public/Mankind

Who works here?

64 employees
500 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

Garfield Weston Foundation	£30,000
National Lottery Community Fund	£17,050
The Grocers' Charity	£4,500

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Epilepsy My Family and Me
£5,200	11/07/2022	British Epilepsy Association will work in North Wales bringing together children and young people with epilepsy their siblings parents and carers for a day out. Two Epilepsy Specialist Nurses will be ....more British Epilepsy Association will work in North Wales bringing together children and young people with epilepsy their siblings parents and carers for a day out. Two Epilepsy Specialist Nurses will be on hand to provide health related learning throughout the day. £5200 will fund venue materials staff and volunteer expenses. Bydd Cymdeithas Epilepsi Prydain yn gweithio yng Ngogledd Cymru gan ddod â phlant a phobl ifanc ag epilepsi eu brodyr a chwiorydd eu rhieni a’u gofalwyr ynghyd am ddiwrnod allan. Bydd dau Nyrs Epilepsi Arbenigol ar gael i ddarparu dysgu’n ymwneud ag iechyd drwy gydol y dydd. Bydd £5200 yn talu am leoliad deunyddiau staff a threuliau gwirfoddolwyr.
The Grocers' Charity - 2021 - Epilepsy Action
£4,500	17/11/2020	Towards project costs to produce tools for healthcare workers to understand better epilepsy to support up to 200 people with learning difficulties in care, at any given time.
National Lottery Community Fund - ‘Epilepsy My Family and Me’ Event in North Wales
£4,200	15/04/2020 12	British Epilepsy Association in Conwy will run an activity that will connect children and young people with epilepsy in North Wales and provide awareness training. £4200 will fund venue staff ....more British Epilepsy Association in Conwy will run an activity that will connect children and young people with epilepsy in North Wales and provide awareness training. £4200 will fund venue staff expenses and informative materials. Bydd Cymdeithas Epilepsi Prydain yng Nghonwy yn cynnal gweithgaredd a fydd yn cysylltu plant a phobl ifanc ag epilepsi yng Ngogledd Cymru ac yn darparu hyfforddiant ymwybyddiaeth. Bydd £4200 yn ariannu lleoliad staff treuliau a deunyddiau addysgiadol.
Garfield Weston Foundation - Main Grants award
£30,000	13/03/2020	Employment Project
National Lottery Community Fund - Epilepsy, My Family and Me event in Moneymore
£3,600	28/11/2019 0	The British Epilepsy Association, known as Epilepsy Action, is using a £3,600 grant to deliver a project at the Jungle NI facility outside Moneymore, to give young people with epilepsy the chance to ....more The British Epilepsy Association, known as Epilepsy Action, is using a £3,600 grant to deliver a project at the Jungle NI facility outside Moneymore, to give young people with epilepsy the chance to learn, build confidence and make friends as well as providing opportunities for parents to engage with epilepsy professionals.
National Lottery Community Fund - 'Epilepsy, My Family and Me' Event in Treharris
£4,050	25/07/2019 12	Project Summary :_x000D_ British Epilepsy Association will use the grant to run an outdoor pursuits day for young people with Epilepsy and their families throughout South Wales, where they can try ....more Project Summary :_x000D_ British Epilepsy Association will use the grant to run an outdoor pursuits day for young people with Epilepsy and their families throughout South Wales, where they can try new activities which they would not be able to access without support. This will help to improve their wellbeing and build relationships with people facing similar challenges. This grant for £4,050 will fund venue costs, staff costs, staff and volunteer expenses.
RS Macdonald Charitable Trust - Self-management training for people with epilepsy
£3,500	21/02/2018	A virtual course, ‘Epilepsy and you’, was launched which helps adults with epilepsy to build confidence, knowledge and skills to manage their condition.
National Lottery Community Fund - Epilepsy Action Family Camp Weekend
£10,000	07/02/2018 12	The group will run a weekend camp for children and young people with epilepsy, and their families. This will improve the social wellbeing and communication skills of young people and provide respite ....more The group will run a weekend camp for children and young people with epilepsy, and their families. This will improve the social wellbeing and communication skills of young people and provide respite for families.
Garfield Weston Foundation - Main Grants award
£25,000	14/09/2017	Advice and Information for people with epilepsy
National Lottery Community Fund - North Wales Bilingual Project
£159,300	23/03/2016 36	North Wales Bilingual Project

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (16)

Current Trustees appointed

Gender Split

Age Range of Trustees: 26-73

AVRIL COELHO Appointed: 2021, Occupation: Assistant Manager

CAMERON HILL Appointed: 2023, Occupation: Civil Servant

DIANE JENNIFER HOCKLEY Appointed: 2017, Occupation: Manager

DEIRDRE BLACK Appointed: 2023, Occupation: Senior Manager

DR PETER CLOUGH Appointed: 2012, Occupation: Associate Specialist In Epilepsy

IAN WALKER Appointed: 2010, Occupation: It & Business Consultant

JAYNE BURTON Appointed: 2012, Occupation: Unemployed

JUNE ELEANOR MASSEY Appointed: 2007, Occupation: Consultant

JANE ELIZABETH RILEY (Chair) Appointed: 2014, Occupation: Associate Director Of Transformation

JOANNE GREER Appointed: 2021, Occupation: None

KATIE STEVENS Appointed: 2022, Occupation: Accountant, Other trusteeships: SCOPE, THE ORPHEUS CENTRE TRUST,

RICHARD JOHN CHAPMAN Appointed: 1987, Occupation: Government Executive

ROBERT NICHOLAS HUTTON Appointed: 2021, Occupation: Retired Solicitor

SARAH LAWSON Appointed: 2018, Occupation: Event Organiser

STEPHEN TIMEWELL Appointed: 2016, Occupation: Retired

THOMAS OSBORNE MCLAUGHLAN Appointed: 2022, Occupation: Retired, Other trusteeship: THE ORPHEUS CENTRE TRUST,

Legal constitution

Charitable company registered in England & Wales on 05/08/1964, number: 234343
Registered at Companies House on 25/03/1964, number: 00797997

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Investment
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

19 returns made; AR06: 5 days late, AR04: 365 days late,

Main office

NEW ANSTEY HOUSE
GATE WAY DRIVE
YEADON
LEEDS
LS19 7XY

Objectives

(I) TO SUPPORT PEOPLE WITH EPILEPSY OR THOSE WITH AN INTEREST IN THE CONDITION(II) TO RAISE AWARENESS AND UNDERSTANDING OF THE CONDITIONAND(III) TO PROMOTE RESEARCH INTO EPILEPSY

Defined Area of Benefit:

NATIONAL

Data Sources