Finance Score: 2

Governance Score: 2

Support Score: 8

Strong growth: +2
No PartB

Dynamic board: +3
Mainly female board: -1

Large volunteers +3
Grant maker support: +5

Overall GiG Score: 12

THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO

Our Vision: Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.Our Mission: The Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working with Smith-Magenis Syndrome and we will be the first point of contact for those seeking information

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
The charity has received backing from several prominent grant makers recently
There has been strong growth in spending since inception
The Board appears to be dynamic in terms of composition

Regulatory & Governance issues to consider:

The Board is predominantly female

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income	Spending	Surplus/ Deficit	Volun- teers
30/06/23	£82,983	£89,727	£-6,744	18
30/06/22	£105,691	£135,109	£-29,418	14
30/06/21	£78,468	£98,206	£-19,738	19
30/06/20	£13,388	£7,696	£5,692	0

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 4 years

www.smith-magenis.org

info@smith-magenis.co.uk

03001010034

Charity Commission for England and Wales

Tweets

Listed activities

Disability
General Charitable Purposes
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

People With Disabilities

Who works here?

Unknown number of employees
18 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£16,867
DCMS	£9,437
The Foyle Foundation	£5,000
Co-Operative Group	£3,899

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - SMS rare disease support Scotland
£8,955	23/05/2023	The group will continue to increase awareness of Smith-Magenis Syndrome (SMS) roll-out its volunteer engagement plan and develop and widen its connections in the Glasgow Forth Valley and Lanarkshire ....more The group will continue to increase awareness of Smith-Magenis Syndrome (SMS) roll-out its volunteer engagement plan and develop and widen its connections in the Glasgow Forth Valley and Lanarkshire areas.
The Foyle Foundation - Small Grants
£5,000	08/02/2022	towards the Information and Support Service (awarded grant in response to coronavirus)
Co-Operative Group - Grant to The Smith-Magenis Syndrome (SMS) Foundation UK
£3,899	23/10/2021	We would like to connect our vulnerable families via online and in-person community activities, as we believe that no one with Smith-Magenis Syndrome should ever feel isolated or alone.
DCMS - Coronavirus Community Support Fund
£9,437	11/09/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
National Lottery Community Fund - SMS COVID-19 Community Cohesion
£7,912	15/04/2020 2	This organisation will provide online 'open-space' chats for parents and carers of people with Smith-Magenis syndrome. This disability is in the high risk category so both people with the disability ....more This organisation will provide online 'open-space' chats for parents and carers of people with Smith-Magenis syndrome. This disability is in the high risk category so both people with the disability and their families or carers are isolated at home.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

EMMA RIDDELL Appointed: 2019

HAZEL WOTHERSPOON (Chair) Appointed: 2019

JACQUELINE JENKINS Appointed: 2023

JAYNE MARIE DAINTY Appointed: 2022

LAURA MADDOCKS Appointed: 2021

MICHAEL PEARSON Appointed: 2019

WENDY FERGUSON Appointed: 2021

Legal constitution

Charity registered in England & Wales on 28/11/2019, number: 1186647

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

4 returns made; all on time

Recent reorganisation events:

Asset transfer in from THE SMITH-MAGENIS SYNDROME (S.M.S.) FOUNDATION UK on 30/12/2021

Main office

61 High Street
PEWSEY
Wiltshire
SN9 5AF

Objectives

THE OBJECTS OF THE CIO ARE:A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE RELIEF OF PERSONS AFFECTED BY SMITH-MAGENIS SYNDROME AND ANY ASSOCIATED CONDITION,B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF SMITH-MAGENIS SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY,C) TO ADVANCE PUBLIC EDUCATION BY PROMOTING RESEARCH INTO THE MANAGEMENT OF SMITH-MAGENIS SYNDROME AND TO PUBLISH USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO SMITH-MAGENIS SYNDROME.

Data Sources