Finance Score: -1

Governance Score: 6

Support Score: 5

Strong growth: +2
Deficit latest year: -2
Good reserves: +1
Fundraising costs high: -2

Dynamic board: +3
Gender balanced board: +3

Grant maker support: +5

Overall GiG Score: 10

NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY

Providing information to the general public about the Condition and providing support and advice to people living with the Condition, their families, carers, service providers and employers. Advocating to ensure that every person has timely and effective diagnosis, treatment and care of the Condition. Funding and disseminating research into the management and cure of axial SpA and its causes.

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker recently
There has been strong growth in spending since inception
The Board appears to be well diversified in terms of gender and dynamic in terms of composition

Financial issues to consider:

Income was significantly lower than spending in the latest year but the charity has substantial reserves available
Fundraising costs are high relative to funds raised

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22	£1,027	£1,519	£-492	£185	£1,179	£770	6.1	13	250
31/12/21	£1,182	£1,138	£44	£118	£1,722	£1,103	11.6	13	250
31/12/20	£829	£1,164	£-334	£151	£1,655	£1,175	12.1	14	270
31/12/19	£2,226	£236	£1,989	£33	£1,989	£1,627	82.7	11	285

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Financial Ratios

Fundraising Costs/Relevant Income: 22.4%
Fundraising Costs/Total Spending: 13%
Senior Staff Costs/Total Spending: 10%
Highest pay band: £120,000-£130,000
Liabilities/Assets: 14%
Liabilities/Income: 19%
Unrestricted Funds/Total Funds: 65%
Reserves/Spending: 6.1 months
Net Current Assets/Spending: 4 months
Quick Ratio: 3.3

Asset Split ?

Established: 5 years

www.nass.co.uk

admin@nass.co.uk

02087411515

Charity Commission for England and Wales

Tweets

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Other specialist outpatient services

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

People With Disabilities

Who works here?

13 employees
250 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

Department for Business, Energy and Industrial Strategy	£18,086
Garfield Weston Foundation	£10,000
DCMS	£9,750
National Lottery Community Fund	£9,172

Specific Donations

Amount	When Months	To be used for
Garfield Weston Foundation - Main Grants award
£10,000	22/04/2022	NASS Self-Management Programme: Improving the health outcomes among axial SpA patients
Sir Jules Thorn Charitable Trust - National Axial Spondyloarthritis Society (NASS) - 03/11/21
£1,500	08/12/2021	Core Funding
National Lottery Community Fund - A new education event to improving health outcomes for AS patients in Newcastle
£9,172	11/06/2021	The project will use the funding to deliver an education day event for local Axial Spondyloarthritis (AS) patients many of whom are shielding. This will provide participants with tailored support ....more The project will use the funding to deliver an education day event for local Axial Spondyloarthritis (AS) patients many of whom are shielding. This will provide participants with tailored support exercise plans self-management skills and coping mechanisms and confidence to live their lives helping to reduce isolation and improve wellbeing.
Cumbria Community Foundation - Donor directed
£500	21/04/2021	Donor directed - Pool hire and physio costs
Department for Business, Energy and Industrial Strategy - Computer-Vision aided community back pain Physiotherapy services
£18,086	01/10/2020	Full Grant details (including summaries) can be found on the Gateway to Research website: https://gtr.ukri.org/projects?ref=79429
DCMS - Coronavirus Community Support Fund
£9,750	03/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (12)

Current Trustees appointed

Gender Split

ALEXIA KATHERINE DREESE GRANATT Appointed: 2022

CLAIRE JEFFRIES Appointed: 2020

DR ANTONI TUCK YIN CHAN Appointed: 2020

DR LESLEY JANE KAY Appointed: 2021

GILLIAN EAMES Appointed: 2019

HANNAH ELIZABETH MURPHY Appointed: 2021

NICHOLAS REID Appointed: 2022

PAUL CURRY Appointed: 2019

POPPY HOCKEN Appointed: 2019

RACHEL DAVIS Appointed: 2023

DR HASAN IMAM SYED TAHIR Appointed: 2022, Other trusteeship: FRIENDS OF CHARITY INTERNATIONAL,

RAJEEVENDRA KUMAR MAHAPATRA (Chair) Appointed: 2019, Other trusteeships: Axial Spondyloarthritis International Federation, AXIAL SPONDYLOARTHRITIS INTERNATIONAL FEDERATION,

Legal constitution

Charity registered in England & Wales on 29/04/2019, number: 1183175

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Investment
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

4 returns made; all on time

Recent reorganisation events:

Asset transfer in from THE NATIONAL ANKYLOSING SPONDYLITIS SOCIETY on 11/11/2021

Main office

NASS
Unit 6
Cambridge Court
210 Shepherds Bush Road
LONDON
W6 7NJ

Objectives

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION AXIAL SPONDYLOARTHRITIS WHICH INCLUDES ANKYLOSING SPONDYLITIS (TOGETHER KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION TO THE GENERAL PUBLIC ABOUT THE CONDITION AND PROVIDING SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES, CARERS, SERVICE –PROVIDERS AND EMPLOYERS; B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION; C) FUNDING AND DISSEMINATING RESEARCH AND ANALYSIS TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT.

Data Sources