Finance Score: -3
Governance Score: -3
Support Score: 1
  • Strong growth: +2
  • Multiple Deficits and declines: -5
  • No PartB
  • No conflicts policy: -1
  • Only 3 Trustees: -2
  • Static board: -3
  • Gender balanced board: +3
  • Grant maker support: +1
Overall GiG Score: -5 ?

ARRHYTHMOGENIC CARDIOMYOPATHY TRUST 

TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT, RELATING TO INHERITED HEART CONDITIONS AND IN PARTICULAR ARRYTHMOGENIC CARDIOMYOPATHY BY FUNDING RESEARCH PROJECTS, SUCH PROJECTS CAN BE DIAGNOSTIC, CURATIVE, THERAPEUTIC OR PALLIATIVE IN NATURE AND TO ENSURE THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH.
Analysis by Giving is Great

Positives:

  • The charity has received modest backing from a grant maker
  • There has been strong growth in spending since inception

Regulatory & Governance issues to consider:

  • This charity does not have a Conflict of Interests policy
  • There are only 3 trustees
  • The Board composition appears to be rather static

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data
  • Income has been volatile and on several occasions in recent years less than spending

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/12/22£5£58£-53n/an/an/an/an/a3
31/12/21£49£58£-10n/an/an/an/an/a0
31/12/20£20£0£20n/an/an/an/an/a2
31/12/19£18£1£18n/an/an/an/an/a5
31/12/18£72£22£50£0£0£0n/a05
Highest pay bracket: less than £60,000
Established: 6 years

james@act-charity.com

07977900938

Charity Commission for England and Wales
UN SDGs
?
Listed activities
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Medical education & research
How it operates
  • Makes Grants to Organisations
  • Sponsors or undertakes research
Where it operates
  • Throughout England And Wales,
Who it helps
  • Other Defined Groups
Who works here?
  • Unknown number of employees
  • 3 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations
Amount When
Months
To be used for
Wates Foundation - Arrhythmogenic Cardiomyopathy Trust
£9,636 09/07/2020
Support towards a three-year fellowship working specifically in the area of ARVC research.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (3)
Current Trustees appointed
Gender Split

Legal constitution
  • Charity registered in England & Wales on 23/01/2018, number: 1176790
Gift Aid
  • NOT registered with HMRC for Gift Aid
Policies in force
  • Investment
  • Risk management
Filing Record
5 returns made; all on time
Main office

Flat 97
Rosebank
Holyport Road
LONDON
SW6 6LJ

Objectives

TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT, RELATING TO INHERITED HEART CONDITIONS AND IN PARTICULAR ARRYTHMOGENIC CARDIOMYOPATHY BY FUNDING RESEARCH PROJECTS, SUCH PROJECTS CAN BE DIAGNOSTIC, CURATIVE, THERAPEUTIC OR PALLIATIVE IN NATURE AND TO ENSURE THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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