Finance Score: 3

Governance Score: 6

Support Score: 8

Liabilities <10%: +3
Good reserves management: +3
Fundraising costs high: -3

Dynamic board: +3
Gender balanced board: +3

Grant maker support: +8

Overall GiG Score: 17

CARDIOMYOPATHY UK

Cardiomyopathy UK saves lives and reduces the misery caused by the heart muscle disease cardiomyopathy. We want people affected by the disorder to live long and fulfilling lives and work to achieve this by raising awareness of the condition, improving access to quality treatment, promoting clinical research and supporting anyone affected by cardiomyopathy every step of the way.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
This charity has a robust balance sheet
Reserves management has been consistently within official guidelines
There have been no material income shortfalls in recent years
The Board appears to be well diversified in terms of gender and dynamic in terms of composition

Financial issues to consider:

Fundraising costs are high relative to funds raised

Established: 8 years

www.cardiomyopathy.org

info@cardiomyopathy.org

01494791224

Charity Commission for England and Wales

Tweets

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22	£1,031	£892	£139	£289	£706	£517	7	18	50
31/12/21	£945	£901	£44	£277	£567	£394	5.2	18	150
31/12/20	£772	£793	£-22	£271	£523	£331	5	18	150
31/12/19	£850	£1,114	£-265	£309	£544	£458	4.9	20	110
31/12/18	£1,159	£817	£342	£337	£809	£551	8.1	19	102
31/12/17	£681	£728	£-47	£271	£467	£427	7	17	0
31/12/16	£652	£674	£-22	£292	£514	£428	7.6	16	0

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Financial Ratios

Fundraising Costs/Relevant Income: 28%
Fundraising Costs/Total Spending: 32.4%
Senior Staff Costs/Total Spending: 10%
Highest pay band: £70,000-£80,000
Liabilities/Assets: 8%
Liabilities/Income: 6%
Unrestricted Funds/Total Funds: 73%
Reserves/Spending: 7 months
Net Current Assets/Spending: 9 months
Quick Ratio: 8.4

Asset Split ?

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

How it operates

Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

People With Disabilities

Who works here?

18 employees
50 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£278,655
DCMS	£45,650
Masonic Trust	£40,000

Specific Donations

Amount	When Months	To be used for
Masonic Trust - MCF Large Grant
£40,000	21/09/2022	Grant to fund salary costs of the Youth Support Manager to provide support to young people with cardiomyopathy with peer support and a dedicated helpline.
DCMS - Coronavirus Community Support Fund
£45,650	19/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
National Lottery Community Fund - Peer Support Project
£278,655	20/06/2019 60	Peer Support Project
Garfield Weston Foundation - Multi-Year Grant (3 Years) award
£60,000	05/12/2018	Expanding our services to help more people affected by cardiomyopathy
BBC Children in Need - Grant to Cardiomyopathy UK
£48,475	27/06/2018 36	This project will provide an online helpline, as well as engaging young people through social media, conferences and a dedicated forum for young people who have cardiomyopathy to help improve their ....more This project will provide an online helpline, as well as engaging young people through social media, conferences and a dedicated forum for young people who have cardiomyopathy to help improve their physical wellbeing, emotional well-being and resilience.
Garfield Weston Foundation - Main Grants award
£20,000	03/05/2017	Improving the lives of people affected by cardiomyopathy in the UK
National Lottery Community Fund - Heart to Heart
£132,340	16/11/2016 36	This is the development and expansion of a project to facilitate a network of local support groups for adults affected by cardiomyopathy. The predominately genetic condition affects around one in 500 ....more This is the development and expansion of a project to facilitate a network of local support groups for adults affected by cardiomyopathy. The predominately genetic condition affects around one in 500 people in England. Rather than being a singular condition it is in fact a group which affects the structure of the heart and reduces its ability to pump blood around the body. Training and development needs for volunteers will be developed to deliver peer support and meet an increased demand for services.

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (12)

Current Trustees appointed

Gender Split

Based on 11/12 persons

ALYSON JANE SMITH Appointed: 2020

DR IAN MCPHERSON OBE Appointed: 2016, Occupation: Clinical Psychologist, Other trusteeship: BIRMINGHAM ASSOCIATION FOR MENTAL HEALTH,

ELISABETH JARMAN Appointed: 2022

GUILLAUME MARCEL OLIVIER FAVIER Appointed: 2018, Other trusteeship: LONDON GAY SYMPHONIC WINDS,

MARK ANTHONY REES Appointed: 2023

MARTIN BLOOM Appointed: 2023

PETER THOMAS Appointed: 2016

RITA SUTTON Appointed: 2020

SOPHIE CORNISH MBE Appointed: 2023

STEPHEN KIRKHAM MC Appointed: 2017

TINA AMISS Appointed: 2015

TEOFILA BUESER Appointed: 2020

Legal constitution

Charity registered in England & Wales on 05/11/2015, number: 1164263

Gift Aid

Registered with HMRC for Gift Aid

Event History

14/12/2016 - Asset transfer in from THE CARDIOMYOPATHY ASSOCIATION
18/04/2019 - Asset transfer in from ALEXANDER JANSONS FOUNDATION
25/08/2022 - Asset transfer in from THE MOSS FAMILY CHARITABLE TRUST

Policies in force

Complaints handling
Conflicting interests
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

7 returns made; all on time

Recent reorganisation events:

Asset transfer in from THE MOSS FAMILY CHARITABLE TRUST on 25/08/2022

Main office

75A Woodside Road
AMERSHAM
Buckinghamshire
HP6 6AA

Objectives

TO RELIEVE PEOPLE SUFFERING FROM THE CONDITION OF CARDIOMYOPATHY AND RELATED CONDITIONS IN PARTICULAR ( BUT WITHOUT PREJUDICE TO THE GENERALITY THEREOF) BY:A) DEVELOPING AND MAINTAINING A NETWORK OF SUPPORT FOR PEOPLE SUFFERING FROM THE CONDITION AND THEIR FAMILIESB) PROMOTING EDUCATION AMONG SUFFERERS OF THE CONDITION, THEIR FAMILIES AND THOSE HAVING THE PROFESSIONAL CARE OF SUFFERERS ABOUT THE SYMPTOMS AND THE TREATMENT OF THE CONDITION; ANDC) PROMOTING OR ASSISTING IN THE PROMOTION OF RESEARCH INTO THE CONDITION AND ITS TREATMENT AND THE PUBLICATION OF THE RESULTS OF THAT RESEARCH.

Data Sources