Finance Score: -5

Governance Score: 6

Support Score: 9

Low unrestricted reserves: -2
Positive trading contribution: +2;Fundraising costs high: -5

Good trustee age range: +3
Dynamic board: +3

Grant maker support: +9

Overall GiG Score: 10

DEBRA

Promote research for the benefit of the public into the cause, nature, treatment and cure of Epidermolysis Bullosa and other related medical conditions.To relieve physical and mental illness and distress among persons suffering from EB by the provision of practical advice, guidance and support for the persons responsible for their welfare

Analysis by Giving is Great

Positives:

This charity is endorsed by a respected charity impact evaluator
More than half of total income was derived from trading and fees in the latest year
There have been no material income shortfalls in recent years
A significant proportion of recent income was derived from major grant makers including the Government
The Board appears to be well diversified in terms of age and dynamic in terms of composition

Financial issues to consider:

Unrestricted reserves appear to be dangerously low at the latest year end
Fundraising costs are extremely high relative to funds raised

Established: 23 years

www.debra.org.uk

debra@debra.org.uk

01344771961

Charity Commission for England and Wales

Tweets

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22	£16,421	£15,969	£452	£13,329	£4,250	£3,763	2.8	362	1,100
31/12/21	£13,317	£12,500	£817	£10,615	£3,798	£4,050	3.9	360	840
31/12/20	£11,413	£13,783	£-2,371	£10,936	£2,981	£2,904	2.5	376	800
31/12/19	£16,798	£16,003	£795	£12,893	£5,352	£5,138	3.9	385	800
31/12/18	£16,138	£15,659	£479	£12,694	£4,556	£4,420	3.4	379	800
31/12/17	£16,182	£16,481	£-299	£13,182	£4,077	£3,997	2.9	383	0
31/12/16	£14,136	£13,508	£628	£11,794	£4,377	£4,301	3.8	360	0
31/12/15	£12,501	£12,987	£-486	£10,463	£3,749	£3,732	3.4	345	0
31/12/14	£11,881	£12,240	£-358	£9,062	£4,302	£3,717	3.6	263	0
31/12/13	£11,360	£10,639	£720	£8,621	£4,660	£3,253	3.7	236	0
31/12/12	£11,044	£10,345	£699	£8,544	£3,940	£3,132	3.6	249	0
31/12/11	£11,979	£10,081	£1,898	£8,212	£3,241	£2,657	3.2	254	0
31/12/10	£10,435	£9,689	£746	£7,821	£1,342	£1,300	1.6	261	0
31/12/09	£7,712	£7,368	£344	£5,748	£596	£549	0.9	228	0
31/12/08	£6,998	£7,240	£-242	£5,058	£252	£218	0.4	156	0
31/12/07	£6,793	£7,181	£-388	£4,625	£494	£393	0.7	144	0
31/12/06	£6,589	£6,772	£-182	£0	£0	£0	n/a	0	0
31/12/05	£5,598	£5,572	£26	£0	£0	£0	n/a	0	0
31/12/04	£5,066	£4,597	£469	£0	£0	£0	n/a	0	0

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Financial Ratios

Fundraising Costs/Relevant Income: 329.9%
Fundraising Costs/Total Spending: 83.5%
Senior Staff Costs/Total Spending: 5%
Highest pay band: £110,000-£120,000
Liabilities/Assets: 49%
Liabilities/Income: 25%
Unrestricted Funds/Total Funds: 89%
Reserves/Spending: 2.8 months
Net Current Assets/Spending: 3 months
Quick Ratio: 0.6

Asset Split ?

Listed activities

Disability
Other Charitable Purposes
The Advancement Of Health Or Saving Of Lives

How it operates

Makes Grants to Individuals
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Children/Young People
People With Disabilities

Who works here?

362 employees
1,100 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£56,477
City Bridge Trust	£7,282
The Grocers' Charity	£5,000

Specific Donations

Amount	When Months	To be used for
The Grocers' Charity - 2022-DEBRA
£5,000	16/03/2022	Towards project costs to deliver a comprehensive community support service to people living with a skin blistering disease so they can cope with the consequences of living with such a debilitating, ....more Towards project costs to deliver a comprehensive community support service to people living with a skin blistering disease so they can cope with the consequences of living with such a debilitating, painful and isolating illness.
National Lottery Community Fund - DEBRA's Annual Member's Weekend
£10,000	12/11/2021	The funding will be used towards the annual members weekend for individuals and families living with Epidermolysis Bullosa (EB). The project aims to provide a safe and inclusive environment for ....more The funding will be used towards the annual members weekend for individuals and families living with Epidermolysis Bullosa (EB). The project aims to provide a safe and inclusive environment for people to meet share their experiences and gain support from their peers.
National Lottery Community Fund - Covid-19 Front-Line Support for People With Epidermolysis Bullosa (EB)
£46,477	08/07/2020 3	DEBRA supports people with epidermolysis bullosa (EB) a rare genetic skin condition experienced by over 2000 people in the UK. The funding will be used to cover staff salaries and provide emotional ....more DEBRA supports people with epidermolysis bullosa (EB) a rare genetic skin condition experienced by over 2000 people in the UK. The funding will be used to cover staff salaries and provide emotional support as well as practical help to make sure that people are supported throughout the crisis.
City Bridge Trust - Grant to DEBRA
£7,282	01/06/2020	A grant of £7,282 to fund the essential and urgent costs outlined in the appliciation, so that the organisation can carry on providing support to Londoners.
National Lottery Community Fund - EB Community Connections
£10,000	05/04/2019 12	The funding will be used to stage a series of regional events for people living with the skin condition Epidermolysis Bullosa. The project aims to bring people together, to provide emotional support ....more The funding will be used to stage a series of regional events for people living with the skin condition Epidermolysis Bullosa. The project aims to bring people together, to provide emotional support and to share knowledge and advice.
DCMS - Building Connections Fund - Youth strand
£36,422	01/04/2019	Epidermolysis Bullosa (a rare skin condition) connection groups, supported by young panel members, will connect young people to mentoring and peer support, creating safe places to develop ambitions ....more Epidermolysis Bullosa (a rare skin condition) connection groups, supported by young panel members, will connect young people to mentoring and peer support, creating safe places to develop ambitions and discuss difficult topics.
DCMS - Building Connections Fund - Youth strand
£36,422	01/01/2019	Epidermolysis Bullosa (a rare skin condition) connection groups, supported by young panel members, will connect young people to mentoring and peer support, creating safe places to develop ambitions ....more Epidermolysis Bullosa (a rare skin condition) connection groups, supported by young panel members, will connect young people to mentoring and peer support, creating safe places to develop ambitions and discuss difficult topics.
Co-Op Foundation - DEBRA - Building Connections Youth Strand Project
£72,843	06/12/2018	Epidermolysis Bullosa (a rare skin condition) connection groups, supported by young panel members, will connect young people to mentoring and peer support, creating safe places to develop ambitions ....more Epidermolysis Bullosa (a rare skin condition) connection groups, supported by young panel members, will connect young people to mentoring and peer support, creating safe places to develop ambitions and discuss difficult topics.
Garfield Weston Foundation - Main Grants award
£25,000	05/12/2018	EB Community Support Services

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)

Current Trustees appointed

Age Range of Trustees: 39-66

CARLY FIELDS Appointed: 2019, Occupation: Editor

CHRISTO KAPOURANI Appointed: 2019, Occupation: None

DANIEL WILLIAM MUNDY Appointed: 2022, Occupation: Finance Director

DEBORAH ANNE INSTALL Appointed: 2023, Occupation: Company Director

JAMES FRANCIS IRVINE (Chair) Appointed: 2011, Occupation: Head Of Structured Products, Investment House

JOANNE MERCHANT Appointed: 2015, Occupation: Gp Practice Manager

MICHAEL PARRY THOMAS Appointed: 2020, Occupation: Company Director Empty Images Ltd

REV DAVID BENDOR-SAMUEL Appointed: 2019, Occupation: Vicar, Other trusteeships: LADY MARY BERTIE, DR ROGERS' CHARITY,

SIMON COLIN TALBOT Appointed: 2021, Occupation: Customer Success Manager/It Consultant

SIMONE BUNTING Appointed: 2021, Occupation: Business Owner/Creative Director

Legal constitution

Charitable company registered in England & Wales on 09/02/2001, number: 1084958
Registered at Companies House on 01/12/2000, number: 04118259

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Investment
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

19 returns made; all on time

Main office

D E B R A
The Capitol Building
Oldbury
BRACKNELL
RG12 8FZ

Objectives

1) TO PROMOTE RESEARCH FOR THE BENEFIT OF THE PUBLIC INTO THE CAUSE, NATURE, TREATMENT AND CURE OF EPIDERMOLYSIS BULLOSA AND OTHER RELATED MEDICAL CONDITIONS AND TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH; AND2) TO RELIEVE PHYSICAL AND MENTAL ILLNESS AND DISTRESS AMONG PERSONS SUFFERING FROM THE SAID CONDITION BY THE PROVISION OF PRACTICAL ADVICE, GUIDANCE AND SUPPORT FOR THE PERSONS RESPONSIBLE FOR THEIR WELFARE AND IN SUCH OTHER WAYS AS THE COMMITTEE SHALL DETERMINE.

Defined Area of Benefit:

NOT DEFINED. IN PRACTICE NATIONAL AND OVERSEAS.

Data Sources