Finance Score: -5

Governance Score: -8

Support Score: 1

Multiple Deficits and declines: -5
No PartB

No conflicts policy: -1
Only 3 Trustees: -2
Static board: -3
Gender balanced board: +3
Latest return overdue -5

Overall weighted support: +1

Overall GiG Score: -12

ARRHYTHMOGENIC CARDIOMYOPATHY TRUST

TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT, RELATING TO INHERITED HEART CONDITIONS AND IN PARTICULAR ARRYTHMOGENIC CARDIOMYOPATHY BY FUNDING RESEARCH PROJECTS, SUCH PROJECTS CAN BE DIAGNOSTIC, CURATIVE, THERAPEUTIC OR PALLIATIVE IN NATURE AND TO ENSURE THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker

Regulatory & Governance issues to consider:

This charity does not have a Conflict of Interests policy
Why are there only 3 trustees?
The Board composition appears to be rather static

Financial issues to consider:

Income has been volatile and on several occasions in recent years less than spending
A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit £k	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22	£5	£58	£-53	n/a	n/a	n/a	n/a	n/a	n/a
31/12/21	£49	£58	£-10	n/a	n/a	n/a	n/a	n/a	n/a
31/12/20	£20	£0	£20	n/a	n/a	n/a	n/a	n/a	n/a
31/12/19	£18	£1	£18	n/a	n/a	n/a	n/a	n/a	n/a
31/12/18	£72	£22	£50	n/a	n/a	n/a	n/a	n/a	n/a

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 7 years

james@act-charity.com

07977900938

Charity Commission for England and Wales

Listed activities

The Advancement Of Health Or Saving Of Lives

GiG Classification

Medical research

How it operates

Makes grants to organisations
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Other Defined Groups

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
Wates Foundation - Arrhythmogenic Cardiomyopathy Trust
£9,636	09/07/2020	Support towards a three-year fellowship working specifically in the area of ARVC research.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (3)

Current Trustees appointed

Gender Split

JAMES WILLIAM BERCHMANS MINCH (Chair) Appointed: 2018

KATHERINE JEAN MINCH Appointed: 2018

RACHEL MARGARET BAILEY Appointed: 2018

Legal constitution

Charity registered in England & Wales on 23/01/2018, number: 1176790

Gift Aid

NOT registered with HMRC for Gift Aid

Policies in force

Investment
Risk management

Filing Record

5 returns made; all on time

Main office

Flat 97
Rosebank
Holyport Road
LONDON
SW6 6LJ

Objectives

Data Sources

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