Finance Score: -2
Governance Score: -3
Support Score: 3
  • Multiple Deficits: -2
  • No PartB
  • No volunteer policy: -2
  • No conflicts policy: -1
  • Grant maker support: +3
Overall GiG Score: -2 ?

ECTODERMAL DYSPLASIA SOCIETY 

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.
Analysis by Giving is Great

Positives:

  • The charity has received modest backing from several prominent grant makers recently
  • Spending has increased over the last 3 years relative to the previous period

Regulatory & Governance issues to consider:

  • Although this charity works with volunteers it does not have a Volunteer Management policy
  • This charity does not have a Conflict of Interests policy

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data
  • On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/12/23£63£71£-8n/an/an/an/an/a10
31/12/22£72£51£21n/an/an/an/an/a0
31/12/21£34£44£-10n/an/an/an/an/a10
31/12/20£43£48£-5n/an/an/an/an/a6
31/12/19£65£50£15n/an/an/an/an/a0
31/12/18£74£49£25£0£0£0n/a00
31/12/17£30£46£-16£0£0£0n/a00
31/12/16£38£48£-9£0£0£0n/a00
31/12/15£25£37£-12£0£0£0n/a00
31/12/14£64£34£29£0£0£0n/a00
31/12/13£36£35£1£0£0£0n/a00
31/12/12£46£28£18£0£0£0n/a00
31/12/11*£35£31£4£0£0£0n/a00
31/12/10£41£28£13£0£0£0n/a00
31/12/09£16£21£-5£0£0£0n/a00
31/12/08£17£21£-4£0£0£0n/a00
31/12/07£22£22£0£0£0£0n/a00
31/12/06£34£24£10£0£0£0n/a00
31/12/05£18£13£5£0£0£0n/a00
31/12/04£13£16£-4£0£0£0n/a00

Highest pay bracket: less than £60,000
Established: 23 years

www.edsociety.co.uk

diana@edsociety.co.uk

01242261332

Charity Commission for England and WalesX
UN SDGs
?
Listed activities
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Other specialist outpatient services
How it operates
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Throughout England And Wales,
Who it helps
  • Children/Young People
  • Elderly/Old People
  • People With Disabilities
  • The General Public/Mankind
Who works here?
  • Unknown number of employees
  • 10 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations
Amount When
Months
To be used for
The Foyle Foundation - Small Grants
£5,000 29/11/2022
towards core costs over the next 12 months
DCMS - Coronavirus Community Support Fund
£9,892 15/09/2020
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (12)
Current Trustees appointed
Gender Split

Legal constitution
  • Charity registered in England & Wales on 31/10/2001, number: 1089135
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Complaints handling
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
Filing Record
20 returns made; AR11: 26 days late,
Main office

UNIT 1 MAIDA VALE BUSINESS CENTRE
LECKHAMPTON
CHELTENHAM
GLOS
GL53 7ER

Objectives

THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TOA) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

Defined Area of Benefit:

NOT DEFINED. IN PRACTICE WORLDWIDE

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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