Finance Score: -2

Governance Score: -3

Support Score: 3

Multiple Deficits: -2
No PartB

No volunteer policy: -2
No conflicts policy: -1

Overall weighted support: +3

Overall GiG Score: -2

ECTODERMAL DYSPLASIA SOCIETY

The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.

Analysis by Giving is Great

Positives:

The charity has received modest backing from several prominent grant makers recently
Spending has increased over the last 3 years relative to the previous period

Regulatory & Governance issues to consider:

Although this charity works with volunteers it does not have a Volunteer Management policy
This charity does not have a Conflict of Interests policy

Financial issues to consider:

On several occasions in recent years income has been less than spending
A PartB annual return has not been required and so detailed financial information is not available from the online data

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit £k	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/23		£63	£71	£-8	n/a	n/a	n/a	n/a	n/a	n/a
31/12/22		£72	£51	£21	n/a	n/a	n/a	n/a	n/a	n/a
31/12/21		£34	£44	£-10	n/a	n/a	n/a	n/a	n/a	n/a
31/12/20		£43	£48	£-5	n/a	n/a	n/a	n/a	n/a	n/a
31/12/19		£65	£50	£15	n/a	n/a	n/a	n/a	n/a	n/a
31/12/18		£74	£49	£25	n/a	n/a	n/a	n/a	n/a	n/a
31/12/17		£30	£46	£-16	n/a	n/a	n/a	n/a	n/a	n/a
31/12/16		£38	£48	£-9	n/a	n/a	n/a	n/a	n/a	n/a
31/12/15		£25	£37	£-12	n/a	n/a	n/a	n/a	n/a	n/a
31/12/14		£64	£34	£29	n/a	n/a	n/a	n/a	n/a	n/a
31/12/13		£36	£35	£1	n/a	n/a	n/a	n/a	n/a	n/a
31/12/12		£46	£28	£18	n/a	n/a	n/a	n/a	n/a	n/a
31/12/11	*	£35	£31	£4	n/a	n/a	n/a	n/a	n/a	n/a
31/12/10		£41	£28	£13	n/a	n/a	n/a	n/a	n/a	n/a
31/12/09		£16	£21	£-5	n/a	n/a	n/a	n/a	n/a	n/a
31/12/08		£17	£21	£-4	n/a	n/a	n/a	n/a	n/a	n/a
31/12/07		£22	£22	£0	n/a	n/a	n/a	n/a	n/a	n/a
31/12/06		£34	£24	£10	n/a	n/a	n/a	n/a	n/a	n/a
31/12/05		£18	£13	£5	n/a	n/a	n/a	n/a	n/a	n/a
31/12/04		£13	£16	£-4	n/a	n/a	n/a	n/a	n/a	n/a

Show more rows -->

Show financials table -->

Download accounts

Highest pay bracket: less than £60,000

Established: 23 years

www.edsociety.co.uk

diana@edsociety.co.uk

01242261332

Charity Commission for England and Wales

Tweets

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

GiG Classification

Outpatient support services

How it operates

Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Children/Young People
Elderly/Old People
People With Disabilities
The General Public/Mankind

Who supports them? ?

Donations from Grant Makers ?

We have details on the following donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
The Foyle Foundation - Small Grants
£5,000	29/11/2022	towards core costs over the next 12 months
DCMS - Coronavirus Community Support Fund
£9,892	15/09/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (12)

Current Trustees appointed

Gender Split

ALAN WALLER Appointed: 2013

ANDY PONTING Appointed: 2017

DIANA PERRY

LARISSA DONNA PELHAM Appointed: 2020

MARTIN WILLIAMS Appointed: 2018

NICK BRIGGS Appointed: 2020

PAUL COLLACOTT (Chair)

SHARON COOPER Appointed: 2012

SIMON LEES-JONES

STEPHEN AYLAND

SCOTT GALLACHER Appointed: 2015

STUART ATKISS Appointed: 2016

Legal constitution

Charity registered in England & Wales on 31/10/2001, number: 1089135

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries

Filing Record

20 returns made; AR11: 26 days late,

Main office

UNIT 1 MAIDA VALE BUSINESS CENTRE
LECKHAMPTON
CHELTENHAM
GLOS
GL53 7ER

Objectives

THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TOA) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

Defined Area of Benefit:

NOT DEFINED. IN PRACTICE WORLDWIDE

Data Sources

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