Finance Score: 0
Governance Score: -2
Support Score: 10
  • Poor Liquidity: -1
  • Good Reserves: +1Pension deficit: -1
  • Multiple Deficits: -2
  • Fundraising costs low: +3
  • No volunteer policy: -2
  • Grant maker support: +10
Overall GiG Score: 8 ?

THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST 

Established in 1897 the National Centre for Young People with Epilepsy is a national charity that is the UK's major provider of services to children and young people with epilepsy and associated learning, emotional and behavioural difficulties. The Trading Name, Young Epilepsy, launched in Nov 2011, reflects our ambition to reach as many of the 112,700 young people with epilepsy, as possible.
Analysis by Giving is Great

Positives:

  • Fundraising costs are unusually low relative to funds raised
  • A significant proportion of recent income was derived from major grant makers including the Government

Regulatory & Governance issues to consider:

  • Although this charity works with volunteers it does not have a Volunteer Management policy
  • This charity uses a corporate trustee

Financial issues to consider:

  • Liquidity appears to have been slender at the latest year end but unrestricted reserves are available
  • There is a pension deficit of £4,633,000
  • On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/07/23£22,193£23,999£-1,806£546£18,440£17,7888.9554202
31/07/22£22,817£23,371£-554£393£18,623£18,0279.35780
31/07/21£24,522£24,794£-272£401£17,223£16,6938.16384
31/07/20£25,310£25,803£-493£431£17,062£16,5877.76375
31/07/19£23,251£23,515£-264£433£19,051£18,3749.46309
31/07/18£25,232£23,641£1,591£541£19,666£18,8719.65090
31/07/17£25,510£28,931£-3,421£732£17,182£16,3486.86300
31/07/16£27,692£26,647£1,045£720£20,278£13,1265.97480
31/07/15£29,199£26,236£2,963£882£20,666£14,7446.76680
31/07/14£27,501£26,530£971£899£19,428£15,1456.96750
31/07/13£27,372£26,187£1,185£783£19,026£12,0355.56590
31/07/12£24,160£24,942£-782£595£17,673£11,5255.56420
31/07/11£24,268£23,574£694£511£20,308£14,9207.66600
31/07/10£24,779£22,912£1,867£329£19,652£14,2797.56350
31/07/09£27,015£22,751£4,264£321£17,561£12,3716.56620
31/07/08£22,372£19,915£2,457£597£14,226£12,4277.55920
31/07/07£19,118£16,931£2,187£475£12,938£11,4438.15570
31/07/06£17,069£16,856£213£0£0£0n/a00
31/07/05£16,670£16,037£633£0£0£0n/a00
31/07/04£15,791£14,917£874£0£0£0n/a00

Financial Ratios
Fundraising Costs/Relevant Income: 2.5%
Fundraising Costs/Total Spending: 2.3%
Senior Staff Costs/Total Spending: 7%
Highest pay band: £120,000-£130,000
Liabilities/Assets: 14%
Liabilities/Income: 17%
Unrestricted Funds/Total Funds: 96%
Reserves/Spending: 8.9 months
Net Current Assets/Spending: 1 months
Quick Ratio: 0.2
Asset Split ?
Established: 61 years

www.youngepilepsy.org.uk

rnorman@youngepilepsy.org.uk

01342 832243

Charity Commission for England and WalesFacebookInstagramX
UN SDGs
?
Listed activities
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
GiG Classification
  • Services for people with disabilities
How it operates
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • People With Disabilities
Who works here?
  • 554 employees
  • 202 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
Wolfson Foundation£497,000
National Lottery Community Fund£375,000
Garfield Weston Foundation£150,000
The Foyle Foundation£50,000
Specific Donations
Amount When
Months
To be used for
Community Foundation for Surrey - The Outdoor and Woodland Learning Programme
£5,000 31/01/2024
9.6129032258065
Funding for a specialist school to provide outdoor learning for pupils.
The Aim Foundation - Grant to Young Epilepsy
£1,000 06/07/2023
Family Fund Donation
Co-Operative Group - Grant to Young Epilepsy
£1,569 22/10/2022
We aim to create a sensory garden and courtyard to reduce anxiety and provide a homely ambiance for patients and their families.
National Lottery Community Fund - Support and Inclusion for Children and Young People with Epilepsy
£375,000 01/08/2022
The funding will support the National Centre for Young People with Epilepsy Charitable Trust working under the name Young Epilepsy (YE) to tackle deep-rooted challenges faced by children with ....more
Garfield Weston Foundation - Major Grants award
£150,000 09/07/2021
DIGITAL SOLUTION FOR CHILDREN AND YOUNG PEOPLE WITH EPILEPSY: PERSONALISED CARE TO SUPPORT EPILEPSY MANAGEMENT
The Foyle Foundation - Learning (MGS)
£50,000 08/07/2021
towards the Inclusion in Education for Children and Young People with Epilepsy project (awarded grant in response to coronavirus)
Wolfson Foundation - Grant to Young Epilepsy
£497,000 09/12/2020
Purchase of OP-MEG sensors and related IT equipment within Health Diagnostic Suite
Community Foundation for Surrey - COVID19 - People with Disabilities
£3,500 03/07/2020
Funding for 10 laptops to enable staff to work with young people and their families remotely during the COVID-19 pandemic
Community Foundation for Surrey - COVID19 - People with Disabilities
£3,500 11/06/2020
Funding for 10 laptops to enable staff to work with young people and their families remotely during the COVID-19 pandemic
London Marathon Charitable Trust - Outdoor and Woodland Learning Project - Young People with Epilepsy
£16,500 10/06/2020
Towards the renovation of an existing woodland shelter used as an outdoor learning classroom and path improvements enabling the space to be wheelchair accessible. The project at St Piers School and ....more
Community Foundation for Surrey - The Woodland Project
£5,000 14/01/2020
18
Funding to build a log cabin and yurt in a woodland area that will enhance the learning of young people with epilepsy.
Co-Operative Group - Grant to Young Epilepsy Lingfield
£2,770 15/11/2019
We want to take children within our community on days out and extend our support group for families and community education.
Co-Operative Group - Grant to Young Epilepsy
£3,609 15/11/2019
We want to deliver vital resources to support local paediatric epilepsy support nurses.
Co-Operative Group - Grant to The National Centre For Young People With Epilepsy Charitable Trust
£3,923 19/11/2018
We need to purchase resources for our awareness event stand including a table, gazebo, tear drop flag and printed signs.
Community Foundation for Surrey - Wheelchair accessible playground
£4,500 01/10/2018
9
Funding for equipment for a wheelchair accessible playground for children with Epilepsy.
Co-Operative Group - Grant to Young Epilepsy Horsham
£3,211 29/11/2017
We want to provide teacher training for local schools about epilepsy and how to provide the assistance that a child with epilepsy will need.
BBC Children in Need - Grant to National Centre For Young People With Epilepsy
£104,010 11/10/2016
36
The project will develop support services in London for young people with epilepsy in transition from childhood to adulthood. This service will improve self-management of their condition, mental ....more
Sport England - Inclusive Outdoor Gym for Community and Disabled Students
£63,042 20/11/2015
27
Funding under Sport England's Inspired Facilities funding programme for a Capital project titled 'Inclusive Outdoor Gym for Community and Disabled Students'. This project is a Exercise & Fitness ....more
National Lottery Community Fund - Connect
£436,167 08/04/2015
48
This will support young people with epilepsy. This project will be delivered across three deprived regions: Blackpool, Clacton-on-Sea and Thanet. It will provide a network of support for young who ....more
True Colours Trust - Towards Phase II research and an infancy handbook
£62,324 16/07/2014
Towards Phase II research and an infancy handbook
Henry Smith Charity - Grant to Young Epilepsy
£150,000 12/09/2013
towards the building costs of an Education Resource Centre for children with severe epilepsy and other neurological disabilities across the UK
National Lottery Community Fund - NCYPE Pirate Playground
£10,000 05/05/2011
12
This is a project by an incorporated charity in East Sussex. The group will use the funding to make improvements to the playground including an active play area and a sensory play area.
National Lottery Community Fund - Epilepsy Education for schools
£234,645 15/07/2010
36
This project will inform and educate teachers and all pupils across London to understand the challenges associated with epilepsy and to not be afraid to include the pupils with the disorder in ....more
Esmee Fairbairn - Grant to Young Epilepsy
£120,000 26/03/2009
36
Towards Core costs Towards the salary of an educational psychologist to improve educational support for young people with epilepsy.
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (1)

  • THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY
Legal constitution
  • Charity registered in England & Wales on 24/07/1963, number: 311877
Gift Aid
  • Registered with HMRC for Gift Aid
Other Regulators
  • Care Quality Commission
  • Ofsted (Office For Standards In Education)
Policies in force
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Filing Record
20 returns made; all on time
Main office

Young Epilepsy
St. Piers Lane
LINGFIELD
RH7 6PW

Objectives

(1) THE ADVANCEMENT OF PUBLIC EDUCATION BY THE PROVISION OF A SPECIAL SCHOOL WITHIN THE MEANING OF THE EDUCATION ACTS AND A COLLEGE FOR FURTHER EDUCATION. (2) THE RELIEF OF CHILDREN AND YOUNG PERSONS SUFFERING FROM DISABILITIES OF MIND OR BODY WITH PARTICULAR REGARD TO CHILDREN AND YOUNG PERSONS IN NEED OF SPECIAL EDUCATIONAL TREATMENT BY REASON OF DISORDERS OF THE NERVOUS SYSTEM AND ESPECIALLY EPILEPSY, INCLUDING EDUCATION, CARE, RESEARCH, ASSESSMENT AND REHABILITATION.

Defined Area of Benefit:

NOT DEFINED. IN PRACTICE LINGFIELD.

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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