Finance Score: -2

Governance Score: 3

Support Score: 6

Multiple Deficits: -2
No PartB

Good trustee age range: +3

Grant maker support: +6

Overall GiG Score: 7

RETT UK

Rett syndrome is the most common cause of profound and multiple disability in females. A complex neurological condition genetic but not usually hereditary, it can occur in any family. We offer support, advocacy and advice to all those affected. We fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with Rett syndrome today.

Analysis by Giving is Great

Positives:

The charity has received backing from a grant maker
The Board appears to be well diversified in terms of age

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
On several occasions in recent years income has been less than spending

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23	£365	£354	£11	n/a	n/a	n/a	n/a	n/a	11
31/03/22	£320	£311	£8	n/a	n/a	n/a	n/a	n/a	3
31/03/21	£348	£278	£69	n/a	n/a	n/a	n/a	n/a	4
31/03/20	£320	£389	£-69	n/a	n/a	n/a	n/a	n/a	3
31/03/19	£317	£384	£-67	n/a	n/a	n/a	n/a	n/a	4
31/03/18	£289	£334	£-45	£0	£0	£0	n/a	0	0
31/03/17	£467	£259	£207	£0	£0	£0	n/a	0	0
31/03/16	£300	£272	£28	£0	£0	£0	n/a	0	0
31/03/15	£209	£237	£-28	£0	£0	£0	n/a	0	0
31/03/14	£197	£210	£-13	£0	£0	£0	n/a	0	0
31/03/13	£293	£268	£25	£0	£0	£0	n/a	0	0
31/03/12	£437	£354	£82	£0	£0	£0	n/a	0	0
31/03/11	£0	£0	£0	n/a	n/a	n/a	n/a	n/a	0

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Highest pay bracket: less than £60,000

Established: 14 years

www.rettuk.org

info@rettuk.org

01582798910

Charity Commission for England and Wales

Tweets

Listed activities

Disability
The Advancement Of Health Or Saving Of Lives

GiG Classification

Services for people with disabilities

How it operates

Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

Children/Young People
People With Disabilities

Who works here?

Unknown number of employees
11 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

DCMS	£90,001
BBC Children in Need	£81,257
Masonic Trust	£15,000
National Lottery Community Fund	£9,802

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - Education Health and Care Plans Support & Advocacy
£9,802	19/03/2021 11	The funding will be used to expand the advice service provided to people living with Rett Syndrome as well as their families & carers. The project aims to support people with severe disabilities ....more The funding will be used to expand the advice service provided to people living with Rett Syndrome as well as their families & carers. The project aims to support people with severe disabilities addressing issues exacerbated during the Covid-19 pandemic.
DCMS - Coronavirus Community Support Fund
£90,001	11/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
Masonic Trust - MCF Small Grant
£15,000	02/06/2020	Unrestricted core funding for small charities
BBC Children in Need - Grant to Rett UK
£81,257	26/06/2019 36	The project will provide training for using 'eye gaze' equipment for children with Rett Syndrome. The equipment will improve communication for the children, will reduce the stress and anixety that ....more The project will provide training for using 'eye gaze' equipment for children with Rett Syndrome. The equipment will improve communication for the children, will reduce the stress and anixety that they experience and build their self esteem
Henry Smith Charity - Grant to Rett UK
£60,000	08/12/2016 36	towards three years' running costs of TESS (Telephone Electronic Support Services) which provides support to parents of children with Rett Syndrome throughout the UK

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (9)

Current Trustees appointed

Gender Split

Age Range of Trustees: 26-83

CLIVE RICHARD BEADLE Appointed: 2016, Occupation: Retired Accountant

DAVID ALFRED ROGERSON Appointed: 2016, Occupation: Retired Senior Manager Social Services Department

ELLIOTT JAMES LE-WARDE Appointed: 2021, Occupation: Trainee Solicitor

JOANNA CAMPOBELLO Appointed: 2017, Occupation: Social Worker

MICHAEL FREDERICK BRITTEN Appointed: 2010, Occupation: Independent Financial Advisor

PHILIP RONALD GANDER Appointed: 2016, Occupation: Retired Senior Manager Social Services Department

PAULINE SOPHIA BARDON Appointed: 2019, Occupation: Telecommunications Consultant

ROBERT VALENTINE, Occupation: Director

STUART NEIL LEDGER Appointed: 2019, Occupation: Chief Finacial Officer

Legal constitution

Charitable company registered in England & Wales on 06/09/2010, number: 1137820
Registered at Companies House on 09/08/2010, number: 07339522

Gift Aid

Registered with HMRC for Gift Aid

Event History

03/05/2011 - Asset transfer in from RETT SYNDROME ASSOCIATION UK
19/04/2017 - Asset transfer in from MARLAIS TRUST FUND FOR THE RELIEF OF RETT SYNDROME AND SPINA BIFIDA AND HYDROCEPHALYS

Policies in force

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

13 returns made; all on time

Main office

VICTORY HOUSE
CHOBHAM STREET
LUTON
LU1 3BS

Objectives

TO PROMOTE THE CARE, WELFARE, TREATMENT AND ADVANCEMENT OF PEOPLE WITH RETT SYNDROME.TO SUPPORT, SUSTAIN AND ASSIST THOSE CARING FOR PEOPLE WITH RETT SYNDROME.TO PROMOTE GREATER UNDERSTANDING OF RETT SYNDROME.TO PROMOTE RESEARCH INTO THE CAUSES, EFFECTS AND METHODS OF PREVENTING RETT SYNDROME, AND TO DISSEMINATE OR PUBLISH THE RESULTS OF SUCH RESEARCH.

Defined Area of Benefit:

UNDEFINED.

Data Sources