Finance Score: 3
Governance Score: 5
Support Score: 11
  • Fundraising costs low: +3
  • No PartB
  • Good trustee age range: +3
  • Dynamic board: +3
  • Mainly female board: -1
  • Grant maker support: +11
Overall GiG Score: 19 ?

SCOTTISH HUNTINGTON'S ASSOCIATION 

Analysis by Giving is Great

Positives:

  • The charity has received backing from multiple prominent grant makers recently
  • There have been no income shortfalls in recent years
  • Fundraising costs are unusually low relative to funds raised
  • The Board appears to be well diversified in terms of age and dynamic in terms of composition

Regulatory & Governance issues to consider:

  • The Board is predominantly female
Established: 34 years
Scottish Charity RegulatorCompanies House
UN SDGs
?
Financial Data
Income & Spending ?
Period ending 31/03/18 31/03/19 31/03/20 31/03/21 31/03/22 31/03/23
Charitable activities £1,288,600 £1,273,685 £1,229,672 £1,305,711 £1,531,648
Donations & Legacies £197,701 £190,110 £303,205 £326,373 £199,426
Other Income £18,063 £21,196 £23,258 £27,084 £98,013
Investment Income £2,113 £3,678 £736 £48 £451
Total income £1,563,528 £1,567,142 £1,638,691 £1,741,536 £1,816,444 £1,987,869
Charitable activities spending £1,302,262 £1,296,643 £1,352,847 £1,534,514 £1,789,926
Fundraising costs 14% 13% 14% 1% 1%
Other spending £12,960 £20,649 £20,272
Total spending £1,531,078 £1,523,070 £1,605,745 £1,534,514 £1,680,339 £1,804,216
Surplus/deficit £32,450 £44,072 £32,946 £207,022 £136,105 £183,653
Listed activities
  • It makes grants, donations, loans, gifts or pensions to individuals
  • It carries out activities or services itself
Purposes
  • The advancement of health
Where it operates
  • Operations cover all or most of Scotland, main operating location: Renfrewshire
Who it helps
  • Children or young people
  • Older People
  • People with disabilities or health problems','Other charities or voluntary bodies

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
Henry Smith Charity£180,000
William Grant Foundation£154,272
National Lottery Community Fund£119,724
Foundation Scotland£32,955
Garfield Weston Foundation£30,000
Scottish Government£27,686
Specific Donations
Amount When
Months
To be used for
Co-Operative Group - Grant to Scottish Huntington's Association SHA
£1,806 21/10/2023
Funding would help SHA Youth Service provide ongoing group based support including a two-night residential, two group day experiences and a camp for all young people aged 8-25.
Foundation Scotland - Grant to Scottish Huntington's Association
£1,000 18/09/2023
Anonymous donation from Foundation Scotland Donor
Crowdfunder - Local Action Fund
£6,031 24/05/2023
Covid response
Foundation Scotland - Scottish Huntington's Core Funding - Dunnet & Canisbay Area
£5,000 19/05/2023
To contribute to the costs of continuing to provide local care and making a positive difference for families affected by Huntington?s Disease locally.
National Lottery Community Fund - Scottish Huntington's Association Youth Services Summer Camp
£10,000 01/11/2022
This group will provide a summer camp in July 2023 for up to 50 children and young people from across Scotland who are affected by Huntington’s disease.
Foundation Scotland - Scottish Huntington?s Association clients
£8,955 06/10/2022
To contribute towards the costs of The South Ayrshire HD Specialist to continue to support families in the fund area of benefit.
National Lottery Community Fund - Financial Wellbeing Service Lothian
£100,000 04/08/2022
This organisation will continue their Financial Wellbeing Service for families affected by Huntington’s disease living in Edinburgh and the Lothians. A Financial Wellbeing Advisor will provide a ....more
Foundation Scotland - Financial Wellbeing Service Dundee
£5,000 19/05/2022
To provide financial wellbeing support to 15 individuals over a year.
Foundation Scotland - Grant to Scottish Huntington's Association
£1,000 28/04/2022
Anonymous donation
Garfield Weston Foundation - Main Grants award
£30,000 11/03/2022
Scottish Huntington's Association Core Service Funding
Foundation Scotland - Scottish Huntington's Core Funding - Dunnet & Canisbay Area
£5,000 11/01/2022
To contribute to the costs of continuing to provide local care for families affected by Huntington?s Disease.
Foundation Scotland - Grant to Scottish Huntington's Association
£500 30/12/2021
Anonymous donation
William Grant Foundation - General operating support 2021-2023
£154,272 28/09/2021
24
General operating support for SHA's specialist Huntington's Disease service in 2021-23. Keywords: degenerative neurological conditions; hereditary conditions; self-management for long-term ....more
Foundation Scotland - Grant to Scottish Huntington's Association
£1,000 11/09/2021
Donation from the Tayside Family Branch from Alison Findlay.
National Lottery Community Fund - Scottish Huntington’s Association Youth Service Activities
£9,724 22/06/2021
36
This group will use the funding for three residential weekend breaks for young people aged between 8 and 24 years of age who are living in families with Huntington’s Disease. The young people will ....more
Henry Smith Charity - Grant to Scottish Huntington's Association
£180,000 09/06/2021
36
towards three years' continuation funding of the 'Financial Wellbeing Service', providing advice and information relating to welfare benefits, debt and financial planning for people impacted by ....more
Foundation Scotland - Grant to Scottish Huntington's Association
£5,000 22/04/2021
To contribute to the costs of continuing to provide care for 12 clients in the areas of Ballantrae, Barhill and Girvan & District, which will make a positive difference to people living with ....more
Foundation Scotland - Grant to Scottish Huntington's Association
£500 09/12/2020
Donation from Alison Findlay
Scottish Government - Scottish Huntingtons Assoc
£27,686 12/05/2020
Detailed description not provided.
National Lottery Community Fund - SHAYP (Scottish Huntington's Association Youth Service)
£249,708 31/01/2019
24
This group will use the funding to continue their youth project supporting young people aged 8 to 25 years, who have a diagnosis of Huntington's disease in their family. Young people will receive ....more
Henry Smith Charity - Grant to Scottish Huntington's Association
£178,500 13/06/2018
36
towards three years' running costs of the 'Financial Wellbeing Service' which provides advice and information relating to welfare benefits, debt and financial planning to people affected by ....more
RS Macdonald Charitable Trust - Financial Wellbeing Service
£36,000 29/11/2017
To work in partnership with Ataxia UK to assess the financial impact of living with ataxia and develop SHA's existing Financial Wellbeing Service to meet those needs. To continue to deliver income ....more
Robertson Trust - Financial Wellbeing Service
£106,500 19/09/2017
Financial Wellbeing Service
BBC Children in Need - Grant to Scottish Huntington's Association
£124,492 14/06/2017
36
This project will help young people affected by Huntington's disease in their family. They will have one to one support and group activities to help them cope with their situations, increase ....more
National Lottery Community Fund - Scottish Huntington's Association Youth Project - providing informatio
£8,140 22/02/2017
12
Scottish Huntington's Association Youth Project - providing informatio
National Lottery Community Fund - Scottish Huntington's Money Advice Project (SHUMAP)
£357,936 25/06/2014
36
Not Available
National Lottery Community Fund - SHAYP (Scottish Huntington's Association Youth Project)
£690,597 21/05/2014
60
Not Available
National Lottery Community Fund - SHAYP Life Summer Camp
£10,000 22/02/2014
12
The grant will fund a five day activity retreat for 40 young people aged between 8 and 25 who live in a family affected by HD.
National Lottery Community Fund - The Amaryllis Festival
£10,000 16/06/2011
12
This group will hold a health fair for families from across Scotland who are affected by Huntingdon's disease. The event will include a range of exhibitors, workshops and lectures. The event will ....more
National Lottery Community Fund - SHAYP Life
£277,434 02/02/2011
48
This project aims to improve the social connections, wellbeing, coping skills and family life of young people affected by Huntington's disease (HD) across Scotland. The project will continue to ....more
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Directors (8)
Current Directors appointed
Gender Split
Based on 7/8 persons

Age Range of Directors: 44-79
  • AIR, Aarran
    Appointed: 2021
    Occupation: Financial Controller
Legal constitution
  • Charity registered in Scotland on 21/11/1989, number: SC010985
  • Registered at Companies House on 21/11/1989, number: SC121496
Filing Record
5 returns made; all on time
Main office

Business First, Burnbrae Road, Linwood Industrial Estate, Linwood, Paisley, PA1 2FB

Objectives

To promote the benefit of Huntington's Disease families/carers in Scotland

Data Sources

Scottish Charity Regulator
360 Giving
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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