| National Lottery Community Fund - Huntington’s Disease Youth Engagement Service (HDYES) |
| £418,360 |
27/03/2023
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This funding will enable the project to develop and grow its existing youth engagement service to reach more children and young people affected by Huntington’s Disease at the earliest opportunity.
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| Cheshire Community Foundation - Specialist Huntington's Disease Advisory service - Cheshire and Warrington |
| £2,500 |
07/09/2022
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Specialist Huntington's Disease Advisory service - Cheshire and Warrington
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| Sir Jules Thorn Charitable Trust - Huntington's Disease Association - 01/09/21 |
| £1,750 |
21/09/2021
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Core Funding
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| Garfield Weston Foundation - Main Grants award |
| £20,000 |
16/07/2021
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Specialist Huntington's Disease Advisory Service - North West
|
| Cheshire Community Foundation - Cheshire Specialist Huntington's Disease Advisory Service |
| £7,500 |
25/06/2021
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The Huntington’s Disease Association is the only organisation dedicated to supporting families affected by Huntington’s disease, a devastating terminal neurological condition of the central
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The Huntington’s Disease Association is the only organisation dedicated to supporting families affected by Huntington’s disease, a devastating terminal neurological condition of the central nervous system. The project will provide 12 month funding towards their local Specialist Huntington’s Disease Advisory service across Cheshire which provides care, advice, support and information to families and professionals affected by Huntington’s disease. The grant will pay for staff costs. People with Huntington’s disease are some of the most vulnerable in our society and without this local Specialist Huntington’s Disease Advisory service, people with Huntington’s disease across Cheshire, would not receive the best possible care; they would have a worse quality of life, be more isolated and increasingly vulnerable.
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| DCMS - Coronavirus Community Support Fund |
| £80,976 |
05/08/2020
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"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to
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"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
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| BBC Children in Need - Grant to Huntingtons Disease Association |
| £3,155 |
17/06/2020
6 |
COVID19 - This grant will provide children with Huntingtons Disease, and their families, additional online support and workbooks to enable children and young people to feel less isolated due to the
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COVID19 - This grant will provide children with Huntingtons Disease, and their families, additional online support and workbooks to enable children and young people to feel less isolated due to the effects of Covid-19 during lockdown.
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| City Bridge Trust - Grant to Huntington's Disease Association |
| £8,589 |
01/06/2020
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A grant of £8,589 to fund the essential and urgent costs outlined in the appliciation, so that the organisation can carry on providing support to Londoners.
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| DCMS - VSCE CMC Fund |
| £3,155 |
01/06/2020
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NET, Comic Relief and Children in Need will use this funding to provide: increased support to vulnerable people and hidden groups, thus reducing the burden on public services; reach local grassroots
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NET, Comic Relief and Children in Need will use this funding to provide: increased support to vulnerable people and hidden groups, thus reducing the burden on public services; reach local grassroots and small organisations who can provide an on-the-ground community response to the crisis; and, support local charitable organisations to mobilise volunteers to enable better targeted support in communities through empowered local groups.
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| County Durham Community Foundation - Specialist Huntington's Disease Advisory Service County Durham, Darlington & Tees Valley |
| £2,000 |
14/04/2020
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To support those with Huntington's Disease to cope with impact of coronavirus.
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| Garfield Weston Foundation - Main Grants award |
| £15,000 |
08/05/2019
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Specialist Huntington's Disease Association - North & Mid Wales
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| Cheshire Community Foundation - Specialist Huntington's Disease Adviser - Cheshire |
| £5,000 |
23/07/2018
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The Huntington’s Disease Association is the only organisation dedicated to supporting families affected by Huntington’s disease (HD) – a devastating terminal neurological condition of the
....more
The Huntington’s Disease Association is the only organisation dedicated to supporting families affected by Huntington’s disease (HD) – a devastating terminal neurological condition of the central nervous system. The grant will fund a Specialist Huntington’s Disease Advisory (SHDA) service in Cheshire which provides care, advice, support and information to families whose lives are turned upside down by HD. The funding will be used towards the cost of a dedicated adviser who develops and delivers the service in Cheshire. People with HD are some of the most vulnerable in our society and without our SHDA service, people with HD in Cheshire, would not receive the best possible care; they would have a worse quality of life, be more isolated and increasingly vulnerable.
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| Essex Community Foundation - Specialist Huntington's Disease Adviser - Alison Heavey |
| £5,000 |
01/03/2018
11 |
Towards the salary of a specialist Huntington's Disease Adviser to support sufferers and their famiies in Essex
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| London Catalyst - Huntington's Disease Association - 2 |
| £3,000 |
06/02/2018
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Specialist Huntington's Disease Adviser for London - Anna Holmes
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| Garfield Weston Foundation - Main Grants award |
| £15,000 |
09/10/2017
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Specialist Huntington's Disease Advisory service for North Wales
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| BBC Children in Need - Grant to Huntingtons Disease Association |
| £116,101 |
14/06/2017
36 |
This project will fund a specialist Huntington's disease youth worker to work with children and young people across the south who have Huntington's disease or who have a member of the family with
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This project will fund a specialist Huntington's disease youth worker to work with children and young people across the south who have Huntington's disease or who have a member of the family with Huntington's disease. The project aims to reduce isolation.
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| Cheshire Community Foundation - Specialist Huntington's Disease Advisory Service - Cheshire |
| £7,000 |
13/03/2017
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The Huntington's Disease Association is the only organisation dedicated to supporting families affected by Huntington's disease - a devastating terminal neurological condition of the central nervous
....more
The Huntington's Disease Association is the only organisation dedicated to supporting families affected by Huntington's disease - a devastating terminal neurological condition of the central nervous system. The project is a contribution towards the Specialist Huntington's Disease Advisory Service in Cheshire, which provides, care, advice, support and information to families whose lives are turned upside down by Huntington's. The grant will be used towards the costs of a dedicated Specialist HD Adviser who develops and delivers the service in Cheshire.
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| County Durham Community Foundation - Advisory (SHDA) service for the North East of England |
| £3,000 |
02/03/2017
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To support the continued delivery of a specialist Huntington’s Disease advisory (SHDA) service for the North East of England.
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| Masonic Trust - Huntington's Advisory Service |
| £30,000 |
19/10/2016
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Specialist Huntington's Disease Advisory Service - North West. Provides intensive support to people with Huntington's Disease and their families and carers, covering Lancashire and Cumbria.
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| Birmingham City Council - Regional Care Advisory Service |
| £15,682 |
01/04/2016
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REGIONAL CARE ADVISORY SERVICE; Health and wellbeing; Adult Social Care & Health Third Sector Grants - Advice & Support
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| The Rayne Foundation - Grant to Huntington's Disease Association |
| £60,000 |
14/03/2016
36 |
Towards the salary of the Specialist Huntington’s Disease Adviser for Wiltshire and Dorset.
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| National Lottery Community Fund - North Wales Regional Care Advisory Service |
| £134,444 |
29/11/2013
36 |
The project will support 60 sufferers of HuntingtonÂ’s disease and carers in Anglesey, Gwynedd, Conwy and Denbighshire. Training for carers will improve their confidence in managing the disease.
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The project will support 60 sufferers of HuntingtonÂ’s disease and carers in Anglesey, Gwynedd, Conwy and Denbighshire. Training for carers will improve their confidence in managing the disease. Faster access to individuals in multi-disciplinary medical teams will improve the care and the knowledge base amongst medical professionals. Training for nursing home staff should increase the number of allocated spaces for respite or permanent residency for affected individuals.
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| National Lottery Community Fund - Regional Care Advisory Service |
| £190,713 |
16/10/2012
60 |
This project will continue and expand the current support service to people with Huntington's Disease and their families. Huntington's Disease is a degenerative illness of the central nervous system
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This project will continue and expand the current support service to people with Huntington's Disease and their families. Huntington's Disease is a degenerative illness of the central nervous system which causes severe physical and mental incapacity. The group will expand from Surrey into South London offering home visits, a telephone helpline, a summer camp for young carers, family days held at local attractions, training for carers, counselling and training for healthcare professionals.
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| National Lottery Community Fund - Regional Care Advisory Service |
| £370,812 |
15/06/2011
60 |
A regional care advisory service for people living with Huntington's Disease in South and West Yorkshire that ceased in 2008 will be restarted and expanded to people on Merseyside. Regional advisors
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A regional care advisory service for people living with Huntington's Disease in South and West Yorkshire that ceased in 2008 will be restarted and expanded to people on Merseyside. Regional advisors will provide educational, social and practical support to people affected by Huntington's Disease including families, carers and professionals.
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| National Lottery Community Fund - Regional Care Advisory Service for North Wales |
| £92,282 |
25/05/2010
36 |
The project will develop the Regional Care Advisory Service, enabling the organisation to provide specialist care to Huntington's Disease patients, their carers and those at risk of getting the
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The project will develop the Regional Care Advisory Service, enabling the organisation to provide specialist care to Huntington's Disease patients, their carers and those at risk of getting the disease throughout Anglesey, Conwy, Denbighshire and Gwynedd. Specialist training will be provided to health and social care professionals, social services, nursing homes and residential care teams in order to better facilitate care for Huntington's Disease patients.
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01513315444
