Finance Score: 2

Governance Score: 3

Support Score: 11

Strong growth: +2
No PartB

Dynamic board: +3

Large volunteers +3
Grant maker support: +8

Overall GiG Score: 16

HARRY'S HYDROCEPHALUS AWARENESS TRUST

1) We work to raise awareness of paediatric hydrocephalus 2) We educate those working in front-line services about the condition to improve understanding and patient care3) We connect families affected by the condition to reduce isolation 4) We campaign for better awareness of head circumference measurement as a tool for early diagnosis5) We support research into better treatment options

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
There has been strong growth in spending since inception
A significant proportion of recent income was derived from major grant makers
The Board appears to be dynamic in terms of composition

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Established: 5 years

www.harrys-hat.org

info@harrys-hat.org

07961001710

Charity Commission for England and Wales

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Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income	Spending	Surplus/ Deficit	Volun- teers
31/03/23	£190,035	£101,019	£89,016	62
31/03/22	£53,095	£32,897	£20,198	53
31/03/21	£35,523	£14,497	£21,026	49
31/03/20	£29,234	£9,727	£19,507	14

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Highest pay bracket: less than £60,000

Listed activities

Disability
Education/Training

How it operates

Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Scotland, Throughout England And Wales,

Who it helps

Other Defined Groups
People With Disabilities

Who works here?

Unknown number of employees
62 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£208,710
BBC Children in Need	£45,000
Community Foundation for Surrey	£7,000
Garfield Weston Foundation	£5,000

Specific Donations

Amount	When Months	To be used for
BBC Children in Need - Grant to Harry's Hydrocephalus Awareness Trust
£45,000	27/07/2023	This project will provide support to families with children and young people diagnosed with hydrocephalus across England. Children and young people will experience improved emotional wellbeing and ....more This project will provide support to families with children and young people diagnosed with hydrocephalus across England. Children and young people will experience improved emotional wellbeing and better mental health.
Crowdfunder - Local Action Fund
£1,849	28/09/2022	Covid response
National Lottery Community Fund - Understanding Hydrocephalus
£9,600	10/06/2022	The funding will be used to hire a sessional worker who will research paediatric hydrocephalus and support families.
National Lottery Community Fund - Next Steps
£179,110	25/02/2022	The funding will be used to hire their first paid member of staff a CEO to take responsibility for day-to-day operations of the charity to further support families where a child has hydrocephalus as ....more The funding will be used to hire their first paid member of staff a CEO to take responsibility for day-to-day operations of the charity to further support families where a child has hydrocephalus as well as raising awareness of the condition both within the general public and the health sector. At present the charity operates around their base in Yateley Hampshire engaging with families and children in Hampshire Surrey and Berkshire whilst some of their work with partner organisations and neurosurgeons is on a national scale.
Co-Operative Group - Grant to Harry's HAT
£1,358	23/10/2021	We will support and train frontline NHS healthcare heroes about hydrocephalus, its management, and treatment so that they are better able to help and support children with it in their care.
Garfield Weston Foundation - Main Grants award
£5,000	03/09/2021	Hydrocephalus app
National Lottery Community Fund - COVID-19 Hydrocephalus App
£10,000	22/05/2020 8	The funding will be used to develop an App for families with Hydrocephalus to store medical information to be used at a time of emergency during and after the Covid-19 pandemic.
Community Foundation for Surrey - Awareness Coordinator for Surrey
£7,000	01/04/2020 11	Funding towards a salary for a part time role in a charity that helps children with a brain condition, based in Surrey.
National Lottery Community Fund - Hydrocephalus Awareness and education
£10,000	27/06/2019 12	The project will use funding to educate and raise awareness of Hydrocephalus in children to health care professionals, and better support families who have a child with condition.

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (9)

Current Trustees appointed

ASHWIN KUMARIA Appointed: 2023

FAITH KITCHEN Appointed: 2019

HARRI MEAD (Chair) Appointed: 2020

LOUISE FLEMING Appointed: 2023

LUCY MU Appointed: 2018

MATTHEW COATES Appointed: 2018

MICHAEL THWAITES Appointed: 2018

NAGHZA KHOKHAR Appointed: 2022

NON HILL Appointed: 2021

Legal constitution

Charity registered in England & Wales on 24/04/2019, number: 1183086

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

4 returns made; all on time

Main office

4 Wildwood Gardens
YATELEY
Hampshire
GU46 6EB

Objectives

To relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/or arachnoid cyst across the UK including by: (a) financing health professionals across the UK with an interest in paediatric arachnoid cysts and/or hydrocephalus to enable them to further their knowledge and understanding ensuring the highest professional standards (b) promoting independent research into the prevention and treatment of hydrocephalus and/or arachnoid cyst provided that all useful results are disseminated to the public (c) providing information and support to people and their families/carers with hydrocephalus and/or arachnoid cyst.

Data Sources