Overall GiG Score: -3 ?
Finance Score: -3
Governance Score: -6
Support Score: 6
  • Volatile income: -3
  • No PartB
  • Static board: -3
  • All female board: -3
  • Large volunteers +5
  • Grant maker support: +1

CONGENITAL ADRENAL HYPERPLASIA SUPPORT GROUP 

For public benefit, to preserve and protect the health of patients with Congenital Adrenal Hyperplasia (CAH) by providing support and information to individuals with CAH, their families and carers, raising awareness among the public and the medical profession and advancing care/treatment of CAH by funding research into CAH.
Analysis by Giving is Great

Positives:

  • This charity has been very successful in attracting volunteers relative to its size
  • The charity has received modest backing from a grant maker
  • There have been no income shortfalls in recent years

Regulatory & Governance issues to consider:

  • The Board is completely female
  • The Board composition appears to be rather static

Financial issues to consider:

  • A PartB annual return has not been required and so detailed financial information is not available from the online data
  • Income has been volatile recently
Established: 6 years

livingwithcah.com

sue@cah.org.uk

01827872970

Charity Commission for England and Wales
UN SDGs
?

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income Spending Surplus/
Deficit
Volun-
teers
31/03/23£8,953£3,544£5,4096
31/03/22£14,845£5,082£9,7632
31/03/21£16,869£14,158£2,7112
31/03/20£28,012£25,377£2,6352
31/03/19£18,398£8,047£10,3512
Highest pay bracket: less than £60,000
What it does
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who works here?
  • 6 volunteers
Who it helps
  • Children/Young People
  • Elderly/Old People
  • People With Disabilities
How it operates
  • Acts as an umbrella or resource body
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Ireland, Northern Ireland, Scotland, Throughout England And Wales,

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations
Amount When
Months
To be used for
National Lottery Community Fund - implementation of effective charity committee and development of
£10,000 27/06/2019
12
The funding will be used to improve the IT functionality of the organisation to support people living with congenital adrenal hyperplasia. The project aims to facilitate the organisation to operate ....more

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (4)
Current Trustees appointed
Gender Split

Legal constitution
  • Charity registered in England & Wales on 27/06/2018, number: 1178951
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
5 returns made; all on time
Main office

27 Fircroft
Kingsbury
TAMWORTH
B78 2JU

Objectives

THE OBJECTS OF THE CIO ARE FOR PUBLIC BENEFIT, TO PRESERVE AND PROTECT THE HEALTH OF PATIENTS WITH CONGENITAL ADRENAL HYPERPLASIA (CAH) BY PROVIDING SUPPORT AND INFORMATION TO INDIVIDUALS WITH CAH, THEIR FAMILIES AND CARERS, RAISING AWARENESS AMONG THE PUBLIC AND THE MEDICAL PROFESSION AND ADVANCING CARE/TREATMENT OF CAH BY FUNDING RESEARCH INTO CAH, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT.

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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