Finance Score: 6

Governance Score: 0

Support Score: 3

Liabilities <10%: +3
Fundraising costs low: +3

Grant maker support: +3

Overall GiG Score: 9

SUDEP ACTION

SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
This charity has a robust balance sheet
There have been no material income shortfalls in recent years
Fundraising costs are low relative to funds raised

Established: 8 years

www.sudep.org

info@sudep.org

01235772850

Charity Commission for England and Wales

Tweets

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/03/23		£506	£413	£93	£45	£440	£364	10.6	9	20
31/03/22	*	£387	£447	£-60	n/a	n/a	n/a	n/a	n/a	50
31/03/21		£501	£426	£76	£86	£408	£355	10	10	0
31/03/20		£484	£480	£4	n/a	n/a	n/a	n/a	n/a	38
31/03/19		£480	£428	£52	n/a	n/a	n/a	n/a	n/a	0
31/03/18	*	£443	£386	£57	£0	£0	£0	n/a	0	0
31/03/17	*	£395	£442	£-47	£0	£0	£0	n/a	0	0

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Financial Ratios

Fundraising Costs/Relevant Income: 8.9%
Fundraising Costs/Total Spending: 10.9%
Highest pay band: Less than £60,000
Liabilities/Assets: 4%
Liabilities/Income: 4%
Unrestricted Funds/Total Funds: 83%
Reserves/Spending: 10.6 months
Net Current Assets/Spending: 13 months
Quick Ratio: 24

Asset Split ?

Listed activities

Other Charitable Purposes
The Advancement Of Health Or Saving Of Lives

How it operates

Makes Grants to Organisations
Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Scotland, Throughout England And Wales,

Who it helps

Other Defined Groups

Who works here?

9 employees
20 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
CareTech foundation - Match Funding Grant
£447	13/07/2021	Match funding Grant awarded to registered charity in the UK to support the applicant's fundraising efforts
Department of Health - SUDEP Action Learning Disability Epilepsy & Resources
£50,000	18/02/2021	ACTION will provide a sustainable and impartial mechanism for driving evidence-based improvements in quality in acute alcohol treatment services (ACTs). It will be complimentary to the delivery of ....more ACTION will provide a sustainable and impartial mechanism for driving evidence-based improvements in quality in acute alcohol treatment services (ACTs). It will be complimentary to the delivery of the NHSE&I funded innovation project to optimise ACTs.
Garfield Weston Foundation - Main Grants award
£20,000	29/11/2018	Knowledge Saves Lives - Taking Action Together
Masonic Trust - MCF Small Grant
£4,000	22/10/2018	Unrestricted core funding for small charities

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (10)

Current Trustees appointed

Gender Split

ALEXANDRA ELEANOR STIRLING Appointed: 2017

DAVID JAMES RAYWOOD SIBREE Appointed: 2020

DR JOHN RAYMOND HIRST (Chair) Appointed: 2017

DR JUDITH MARY SHAKESPEARE Appointed: 2019, Occupation: Retired, Other trusteeship: THE LADY NUFFIELD HOME,

GRAHAM JOHN FAULKNER Appointed: 2017

JOHN MARK PHILLIPS BA, MICE Appointed: 2017

PROFESSOR MICHAEL PATRICK KERR Appointed: 2017

RACHEL SHAH BA, ICAEW Appointed: 2017

SIMON LEES Appointed: 2017

STEPHEN BROWN Appointed: 2017

Legal constitution

Charity registered in England & Wales on 04/11/2015, number: 1164250

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Paying staff
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

7 returns made; AR22: 149 days late, AR18: 70 days late, AR17: 28 days late,

Main office

SUDEP ACTION
18 Newbury Street
WANTAGE
OX12 8DA

Objectives

THE PROMOTION OF ANY CHARITABLE PURPOSE DIRECTED TO SUPPORTING AND ALLEVIATING THE MENTAL AND PHYSICAL DISTRESS OF THOSE WHO ARE BEREAVED FOLLOWING THE DEATH OF SOMEONE WITH EPILEPSY INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF BEREAVED FAMILIES.THE PROMOTION OF ANY CHARITABLE PURPOSE TO IMPROVE UNDERSTANDING AND COMMUNICATION TO PEOPLE WITH EPILEPSY, THEIR FAMILIES, PROFESSIONALS, POLICY-MAKERS AND OTHER INTERESTED PARTIES CONCERNING PREVENTION OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP) AND ALL EPILEPSY-RELATED DEATHS INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF EPILEPSY, RECOGNITION AND MANAGEMENT OF RISKS AND, IN DUE COURSE, TO MINIMISE THE OCCURRENCE OF SUCH DEATHS.

Data Sources