| National Lottery Community Fund - The Rare Disease Showcase Series 2023 |
| £10,000 |
17/02/2023
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The funding will be used to deliver an annual event focusing on research and care for people with rare diseases. This project aims to bring together professionals and those facing the diseases to
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The funding will be used to deliver an annual event focusing on research and care for people with rare diseases. This project aims to bring together professionals and those facing the diseases to discuss best practices raise awareness and support the community.
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| National Lottery Community Fund - The Empowerment Programme: Phase 2 |
| £403,822 |
20/01/2023
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The project will provide free training & support to rare disease patient groups. This funding will ensure everyone receives support through workshops mentoring and webinars to improve wellbeing.
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| Department for Business, Energy and Industrial Strategy - BUILDING A SUSTAINABLE EUROPEAN INNOVATION PLATFORM TO ENHANCE THE REPURPOSING OF MEDICINES FOR ALL |
| £75,582 |
01/04/2022
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Full Grant details (including summaries) can be found on the Gateway to Research website: https://gtr.ukri.org/projects?ref=10039985
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| National Lottery Community Fund - The Rare Disease Showcase Series 2022 |
| £10,000 |
28/10/2021
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The funding will be used to deliver an annual event to showcase rare disease research and care for people living with rare diseases. The project aims to bring families and medical practitioners
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The funding will be used to deliver an annual event to showcase rare disease research and care for people living with rare diseases. The project aims to bring families and medical practitioners together to share research raise awareness of their condition and facilitate connections to support improved quality of life for people affected by/living with rare diseases.
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| Cambridgeshire Community Foundation - Grant to Findacure |
| £5,000 |
01/05/2020
3 |
to increase their output of focus groups, webinars and e-Learning content to fill the immediate need faced by 600 people in their rare disease patient groups as a result of lockdown. Their response
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to increase their output of focus groups, webinars and e-Learning content to fill the immediate need faced by 600 people in their rare disease patient groups as a result of lockdown. Their response to COVID-19 is to deliver a minimum of 3 bespoke e-learning packages, with webinars at least every 3 weeks (usually every 2-3 months).
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| National Lottery Community Fund - The Showcase Series |
| £10,000 |
22/04/2020
12 |
The funding will be used to run the project's annual rare disease showcase event to bring people together with professionals clinicians and others to share knowledge and information. The project
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The funding will be used to run the project's annual rare disease showcase event to bring people together with professionals clinicians and others to share knowledge and information. The project provides support for people and families who are impacted by rare diseases and support those who are living a rare diseases.
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| National Lottery Community Fund - Empowerment Programme |
| £336,820 |
18/04/2019
36 |
The project will use funding to develop an empowerment programme which will build on their existing work, providing training and support services to people with rare diseases. The project will use
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The project will use funding to develop an empowerment programme which will build on their existing work, providing training and support services to people with rare diseases. The project will use funding to combine their training services into one integrated programme.
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| National Lottery Community Fund - Peer Mentoring Programme - Community Mentoring Event |
| £9,525 |
14/03/2018
12 |
This project will provide mentoring for rare disease patient groups, bringing members together to share learning, ideas and support. This will help the groups to develop their activities and drive
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This project will provide mentoring for rare disease patient groups, bringing members together to share learning, ideas and support. This will help the groups to develop their activities and drive forward essential support and research projects.
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| Masonic Trust - Core funding |
| £5,000 |
21/02/2018
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Provides advice, information and training for patient groups for people with rare diseases.
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| National Lottery Community Fund - Drug Repurposing for Rare Diseases |
| £27,600 |
21/10/2015
12 |
The funding will support feasibility work on the development of a social impact bond focussed on drug repurposing. This is using medicine and science already available for use in one disease to
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The funding will support feasibility work on the development of a social impact bond focussed on drug repurposing. This is using medicine and science already available for use in one disease to create new treatments for patients who suffer from a different rare disease. Due to small patient populations there is no economic incentive for pharmaceutical companies to pursue this research. The grant will fund budget impact models, financial consultation, project management and other support.
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| National Lottery Community Fund - Training Videos for Rare Disease Patient Groups |
| £10,000 |
28/01/2015
12 |
Not Available
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| The Fore - Grant to Findacure |
| £20,000 |
31/05/2014
36 |
Grant funded the organisation to move forward in line with its strategy and to leverage new funding streams that were in process.
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| National Lottery Community Fund - Rare Disease Patient Empowerment Workshop |
| £10,000 |
18/07/2013
12 |
This is a project by an incorporated charity in Cambridge. The organisation will use the funding to host a two day event for people with rare diseases to access support and information from
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This is a project by an incorporated charity in Cambridge. The organisation will use the funding to host a two day event for people with rare diseases to access support and information from scientists and industry professionals. This will enable people with rare diseases to meet other patients, set up patient support groups and ultimately empower them to develop treatment plans.
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| The Fore - Grant to Findacure |
| £10,000 |
30/04/2013
36 |
Grant enabled Findacure to organise the world’s first workshop on fundamental diseases, hosted by the University of Cambridge, bringing together leaders in the field. Funds also covered a Project
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Grant enabled Findacure to organise the world’s first workshop on fundamental diseases, hosted by the University of Cambridge, bringing together leaders in the field. Funds also covered a Project Manager's salary, through which they raised a further £125,000.
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