Finance Score: -3

Governance Score: 6

Support Score: 1

Volatile income: -3
No PartB

Good trustee age range: +3
Gender balanced board: +3

Grant maker support: +1

Overall GiG Score: 4

CMT UNITED KINGDOM

National support group for people with Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy. Provides advice, information and support via website, magazine, leaflets and conferences.

Analysis by Giving is Great

Positives:

The charity has received modest backing from a grant maker
There have been no material income shortfalls in recent years
The Board appears to be well diversified in terms of age and gender

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income has been volatile recently

Established: 18 years

www.cmt.org.uk

ceo@cmt.org.uk

01202474203

Charity Commission for England and Wales

Tweets

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
30/09/22	£142	£145	£-2	n/a	n/a	n/a	n/a	n/a	10
30/09/21	£292	£118	£174	n/a	n/a	n/a	n/a	n/a	10
30/09/20	£262	£118	£144	n/a	n/a	n/a	n/a	n/a	6
30/09/19	£155	£146	£9	n/a	n/a	n/a	n/a	n/a	10
30/09/18	£229	£194	£36	£0	£0	£0	n/a	0	0
30/09/17	£200	£173	£28	£0	£0	£0	n/a	0	0
30/09/16	£181	£214	£-32	£0	£0	£0	n/a	0	0
30/09/15	£153	£152	£1	£0	£0	£0	n/a	0	0
30/09/14	£140	£192	£-51	£0	£0	£0	n/a	0	0
30/09/13	£133	£112	£22	£0	£0	£0	n/a	0	0
30/09/12	£102	£107	£-5	£0	£0	£0	n/a	0	0
30/09/11	£149	£133	£16	£0	£0	£0	n/a	0	0
30/09/10	£118	£105	£13	£0	£0	£0	n/a	0	0
30/09/09	£78	£70	£8	£0	£0	£0	n/a	0	0
30/09/08	£83	£74	£9	£0	£0	£0	n/a	0	0
30/09/07	£94	£56	£38	£0	£0	£0	n/a	0	0
30/09/06	£52	£49	£3	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Listed activities

Disability

How it operates

Provides advocacy/advice/information
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

People With Disabilities

Who works here?

Unknown number of employees
10 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
Masonic Trust - Core funding
£5,000	21/02/2018	Helpline, advice and information and events to support people affected by Charcot-Marie-Tooth disease, a rare neurological condition affecting the peripheral nerves.
National Lottery Community Fund - CMT Festival
£9,910	27/09/2017 12	A festival and information event will be funded for people living with Charcot-Marie-Tooth disease, bringing people together and providing them with advice and support regarding their condition.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

Age Range of Trustees: 28-77

CAPTAIN ANTON JAMES Appointed: 2014, Occupation: Retired Captain, Merchant Navy

DENISE JAMES Appointed: 2023, Occupation: Retired

KARIN RODGERS, Occupation: Homemaker

PAUL FLEMING (Chair) Appointed: 2018, Occupation: Financial Adviser

RICHARD BATCHELOR Appointed: 2018, Occupation: Retired

SOPHIE ARNOLD Appointed: 2018, Occupation: Office Manager

THOMAS DAVID HENDERSON Appointed: 2020, Occupation: Consultant

Legal constitution

Charitable company registered in England & Wales on 02/12/2005, number: 1112370
Registered at Companies House on 26/09/2005, number: 05574584

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

17 returns made; all on time

Main office

CMTUK
3 Groveley Road
CHRISTCHURCH
BH23 3HB

Objectives

THE CHARITY'S OBJECT IS THE RELIEF OF THE NEEDS OF PEOPLE SUFFERING FROM CMT/HMSN/PMA BY (BUT NOT EXCLUSIVELY):1. THE PROVISION OF INFORMATION, ADVICE AND OTHER ASSISTANCE AND SUPPORT TO THOSE AFFECTED BY CMT/HMSN/PMA;2. THE PROVISION OF INFORMATION, ADVICE AND SUPPORT TO THE CARERS OF PERSONS AFFECTED BY CMT/HMSN/PMA;3. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF CMT/HMSN/PMA AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH;4. RAISING THE AWARENESS OF THE PUBLIC AND OF THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITY’S OBJECTS.

Defined Area of Benefit:

NOT DEFINED.

Data Sources