Overall GiG Score: 9 ?
Finance Score: -2
Governance Score: 2
Support Score: 9
  • Liabilities <10%: +3
  • Accounts overdue -5
  • 12+ Trustees: -1
  • Gender balanced board: +3
  • Large volunteers +3
  • Grant maker support: +6

SPINAL MUSCULAR ATROPHY UK 

We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
Analysis by Giving is Great

Positives:

  • This charity has been successful in attracting volunteers relative to its size
  • The charity has received backing from several prominent grant makers recently
  • This charity has a robust balance sheet
  • There have been no material income shortfalls in recent years
  • The Board appears to be well diversified in terms of gender

Regulatory & Governance issues to consider:

  • There are 16 trustees whereas the Charities Commission recommends a maximum of 12

Financial issues to consider:

  • Latest accounts are overdue for filing
Established: 19 years

www.smauk.org.uk

office@smauk.org.uk

01789267520

Charity Commission for England and WalesFacebookInstagramX
UN SDGs
?

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/22£839£715£124£162£589£5499.212150
31/03/21£725£575£149£146£465£4449.312150
31/03/20£926£848£78£267£316£2994.210150
31/03/19£801£766£35£164£238£2133.312162
31/03/18£670£591£79£128£203£9921227
31/03/17£580£632£-52£118£124£961.890
31/03/16*£596£705£-108£163£176£1031.7130
31/03/15£691£715£-24£227£284£1943.3100
31/03/14£600£564£37£147£308£1192.5100
31/03/13£625£649£-23£280£267£931.770
31/03/12£636£630£5£152£278£1252.4110
31/03/11£615£608£7£156£271£1663.3120
31/03/10£637£570£68£138£261£1733.7100
31/03/09£770£812£-42£192£175£1081.6140
31/03/08£819£869£-50£321£241£1081.5140
31/03/07£670£638£31£277£301£2053.8130
31/03/06£528£481£48£0£0£0n/a00

Financial Ratios
Fundraising Costs/Relevant Income: 19.3%
Fundraising Costs/Total Spending: 22.6%
Highest pay band: Less than £60,000
Liabilities/Assets: 5%
Liabilities/Income: 4%
Unrestricted Funds/Total Funds: 93%
Reserves/Spending: 9.2 months
Net Current Assets/Spending: 10 months
Quick Ratio: 18.7
Asset Split ?
What it does
  • Disability
  • The Advancement Of Health Or Saving Of Lives
Who works here?
  • 12 employees
  • 150 volunteers
Who it helps
  • Other Defined Groups
  • People With Disabilities
How it operates
  • Makes Grants to Individuals
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
National Lottery Community Fund£380,415
DCMS£26,561
Garfield Weston Foundation£25,000
Sir Jules Thorn Charitable Trust£4,250
Specific Donations
Amount When
Months
To be used for
Sir Jules Thorn Charitable Trust - Spinal Muscular Atrophy Support UK - 06/09/22
£3,000 02/12/2022
Core Funding
Sir Jules Thorn Charitable Trust - Spinal Muscular Atrophy UK (SMA UK) - 17/05/21
£1,250 02/06/2021
Core Funding
DCMS - Coronavirus Community Support Fund
£26,561 11/08/2020
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more
Garfield Weston Foundation - Main Grants award - COVID19 response
£25,000 17/07/2020
Unrestricted support to enable charity to continue supporting the SMA Community during the COVID-19 crisis
National Lottery Community Fund - SMA Support into the 2020?s
£380,415 17/05/2019
36
SMA Support into the 2020's
BBC Children in Need - Grant to Spinal Muscular Atrophy Support UK
£10,000 15/03/2019
12
This project will provide specialist equipment and sensory toy packs for babies and children with Spinal Muscular Atrophy. This will help provide interaction, happiness and development.
National Lottery Community Fund - SMA Reach - Digital messaging
£10,000 29/11/2018
12
This funding will be used to provide digital medical services for people with Spinal Muscular Atrophy. The project aims to offer support on condition management and improve quality of life.
RS Macdonald Charitable Trust - Scottish SMA Outreach 2018/19
£5,500 27/06/2018
To provide a range of services, support and advocacy for Scottish families suffering with spinal muscular atrophy in all its forms
National Lottery Community Fund - SMA Support NI Christmas Party for Kids with SMA
£2,850 14/09/2017
11
The group is a UK wide organisation providing support to people affected by Spinal Muscular Atrophy (SMA). The project used the £2,850 grant to organise a Christmas party and visit from Santa for ....more
National Lottery Community Fund - Tackling future change
£10,000 02/08/2017
12
This group will use the funding to commission the first, free to download, Emergency Health Care Plan phone application. This will allow those with Spinal Muscular Atrophy and their families to ....more
RS Macdonald Charitable Trust - Scottish Outreach
£5,000 31/05/2017
This project provides a full range of support services for people in Scotland dealing with spinal muscular atrophy. Dependent on the severity of the diagnosis our services are bespoke to the ....more
The Clothworkers Foundation - Grant to Spinal Muscular Atrophy Support UK
£5,000 03/08/2016
purchase of sensory toys for a charity which works with disabled people in Stratford upon Avon
RS Macdonald Charitable Trust - Scottish Core Support Services
£5,000 24/02/2016
SMA Support UK is in contact with some 1000 people living with the condition and their families and support networks. They provide a range of services to support families these include free ....more
National Lottery Community Fund - Digital pathways to support families, individuals and professionals
£10,000 02/12/2015
12
The group will use the funding to develop its services, online and printed resources that support people who live with the effects of spinal problems. This will improve the way in which the ....more
National Lottery Community Fund - Outreach Support Service
£499,714 14/11/2014
48
Not Available
Henry Smith Charity - Grant to Jennifer Trust for Spinal Muscular Atrophy
£60,000 05/12/2013
36
towards three years' continuation funding of the running costs of the Peer Support Network providing practical and emotional support to families throughout the UK affected by Spinal Muscular Atrophy
Lloyds Bank Foundation - Grant to The Jennifer Trust for Spinal Muscular Atrophy
£20,000 17/08/2012
the salary of the Outreach Worker
National Lottery Community Fund - Help for Today, Hope for Tomorrow
£10,000 01/03/2012
12
This is a project by a charity in Stratford-upon-Avon, Warwickshire, serving beneficiaries across England. The group will use the funding to produce various leaflets and a magazine to support people ....more
National Lottery Community Fund - Spinal Muscular Atrophy Outreach Programme
£402,782 11/02/2010
60
The charity supports families affected by Spinal Muscular Atrophy (SMA) will expand its project across England. Ite provides experienced and knowledgeable outreach workers to visit families, giving ....more
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (16)
Current Trustees appointed
Gender Split

Age Range of Trustees:
  • TOBY JOHN MILDON Appointed: 2019, Occupation: Diversity And Inclusion Consultant
Legal constitution
  • Charity registered in England & Wales on 17/11/2004, number: 1106815
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Complaints handling
  • Conflicting interests
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding vulnerable beneficiaries
  • Volunteer management
Filing Record
17 returns made; AR16: 1 days late,
Recent reorganisation events:
  • Asset transfer in from SMA TRUST on 05/05/2020
Main office

Unit 9 Shottery Brook Office Park
Timothys Bridge Road
Stratford Enterprise Park
STRATFORD-UPON-AVON
Warwickshire
CV37 9NR

Objectives

1. THE RELIEF OF PEOPLE LIVING WITH SPINAL MUSCULAR ATROPHY AND RELATED MEDICAL CONDITIONS AND TO RAISE THE PUBLIC'S AWARENESS OF SUCH CONDITIONS.2. THE RELIEF OF PERSONS WHO ARE IN NEED AFTER EXPERIENCING A BEREAVEMENT OR LOSS DUE TO SPINAL MUSCULAR ATROPHY.3. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY.

Defined Area of Benefit:

NOT DEFINED.

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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