| Sir Jules Thorn Charitable Trust - Spinal Muscular Atrophy Support UK - 06/09/22 |
| £3,000 |
02/12/2022
|
Core Funding
|
| Sir Jules Thorn Charitable Trust - Spinal Muscular Atrophy UK (SMA UK) - 17/05/21 |
| £1,250 |
02/06/2021
|
Core Funding
|
| DCMS - Coronavirus Community Support Fund |
| £26,561 |
11/08/2020
|
"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public
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"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
|
| Garfield Weston Foundation - Main Grants award - COVID19 response |
| £25,000 |
17/07/2020
|
Unrestricted support to enable charity to continue supporting the SMA Community during the COVID-19 crisis
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| National Lottery Community Fund - SMA Support into the 2020?s |
| £380,415 |
17/05/2019
36 |
SMA Support into the 2020's
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| BBC Children in Need - Grant to Spinal Muscular Atrophy Support UK |
| £10,000 |
15/03/2019
12 |
This project will provide specialist equipment and sensory toy packs for babies and children with Spinal Muscular Atrophy. This will help provide interaction, happiness and development.
|
| National Lottery Community Fund - SMA Reach - Digital messaging |
| £10,000 |
29/11/2018
12 |
This funding will be used to provide digital medical services for people with Spinal Muscular Atrophy. The project aims to offer support on condition management and improve quality of life.
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| RS Macdonald Charitable Trust - Scottish SMA Outreach 2018/19 |
| £5,500 |
27/06/2018
|
To provide a range of services, support and advocacy for Scottish families suffering with spinal muscular atrophy in all its forms
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| National Lottery Community Fund - SMA Support NI Christmas Party for Kids with SMA |
| £2,850 |
14/09/2017
11 |
The group is a UK wide organisation providing support to people affected by Spinal Muscular Atrophy (SMA). The project used the £2,850 grant to organise a Christmas party and visit from Santa for children with SMA across Northern Ireland.
|
| National Lottery Community Fund - Tackling future change |
| £10,000 |
02/08/2017
12 |
This group will use the funding to commission the first, free to download, Emergency Health Care Plan phone application. This will allow those with Spinal Muscular Atrophy and their families to manage and keep their personal care plan electronically
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This group will use the funding to commission the first, free to download, Emergency Health Care Plan phone application. This will allow those with Spinal Muscular Atrophy and their families to manage and keep their personal care plan electronically and ensure their health needs are met in an emergency situation.
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| RS Macdonald Charitable Trust - Scottish Outreach |
| £5,000 |
31/05/2017
|
This project provides a full range of support services for people in Scotland dealing with spinal muscular atrophy. Dependent on the severity of the diagnosis our services are bespoke to the individual's needs but do include: Home visit outreach,
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This project provides a full range of support services for people in Scotland dealing with spinal muscular atrophy. Dependent on the severity of the diagnosis our services are bespoke to the individual's needs but do include: Home visit outreach, peer support (trained volunteers), Fast response & equipment grants, Digital care pathways, SMA Patient registry and much more.
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| The Clothworkers Foundation - Grant to Spinal Muscular Atrophy Support UK |
| £5,000 |
03/08/2016
|
purchase of sensory toys for a charity which works with disabled people in Stratford upon Avon
|
| RS Macdonald Charitable Trust - Scottish Core Support Services |
| £5,000 |
24/02/2016
|
SMA Support UK is in contact with some 1000 people living with the condition and their families and support networks. They provide a range of services to support families these include free information, emotional support, practical advice and
....more
SMA Support UK is in contact with some 1000 people living with the condition and their families and support networks. They provide a range of services to support families these include free information, emotional support, practical advice and guidance, multi sensory toy packs, equipment and urgent financial grants, peer support service and information and social events
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| National Lottery Community Fund - Digital pathways to support families, individuals and professionals |
| £10,000 |
02/12/2015
12 |
The group will use the funding to develop its services, online and printed resources that support people who live with the effects of spinal problems. This will improve the way in which the organisation meets the needs of its service users and
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The group will use the funding to develop its services, online and printed resources that support people who live with the effects of spinal problems. This will improve the way in which the organisation meets the needs of its service users and improve the wellbeing for those accessing the new resources.
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| National Lottery Community Fund - Outreach Support Service |
| £499,714 |
14/11/2014
48 |
Not Available
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| Henry Smith Charity - Grant to Jennifer Trust for Spinal Muscular Atrophy |
| £60,000 |
05/12/2013
36 |
towards three years' continuation funding of the running costs of the Peer Support Network providing practical and emotional support to families throughout the UK affected by Spinal Muscular Atrophy
|
| Lloyds Bank Foundation - Grant to The Jennifer Trust for Spinal Muscular Atrophy |
| £20,000 |
17/08/2012
|
the salary of the Outreach Worker
|
| National Lottery Community Fund - Help for Today, Hope for Tomorrow |
| £10,000 |
01/03/2012
12 |
This is a project by a charity in Stratford-upon-Avon, Warwickshire, serving beneficiaries across England. The group will use the funding to produce various leaflets and a magazine to support people with Spinal Muscular Atrophy, their families and
....more
This is a project by a charity in Stratford-upon-Avon, Warwickshire, serving beneficiaries across England. The group will use the funding to produce various leaflets and a magazine to support people with Spinal Muscular Atrophy, their families and partner organisations.
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| National Lottery Community Fund - Spinal Muscular Atrophy Outreach Programme |
| £402,782 |
11/02/2010
60 |
The charity supports families affected by Spinal Muscular Atrophy (SMA) will expand its project across England. Ite provides experienced and knowledgeable outreach workers to visit families, giving intensive support and advice. SMA is an inherited
....more
The charity supports families affected by Spinal Muscular Atrophy (SMA) will expand its project across England. Ite provides experienced and knowledgeable outreach workers to visit families, giving intensive support and advice. SMA is an inherited neuromuscular condition that affects the nerves in an area of the spinal cord called the anterior horn. Babies with type one rarely survive beyond the age of two; adolescents and adults who have a less severe form still need help to walk, breathe and feed.
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01789267520
