Overall GiG Score: 10 ?
Finance Score: -3
Governance Score: 8
Support Score: 5
  • Excess liquidity: -1
  • Large legacies income: +2
  • Reasonable growth: +1
  • Multiple Deficits and declines: -5
  • 12+ Trustees: -1
  • Good trustee age range: +3
  • Dynamic board: +3
  • Gender balanced board: +3
  • Grant maker support: +5

EPILEPSY RESEARCH INSTITUTE UK 

The Epilepsy Research Institute UK is currently trading as Epilepsy Research UK. Epilepsy Research UK was formed by the merger of the Epilepsy Research Foundation and the Fund for Epilepsy in April 2007. It is the only national charity exclusively dedicated to driving and enabling life changing, life saving research.
Analysis by Giving is Great

Positives:

  • This charity has received more than half of its income from legacies in recent years
  • There has been reasonable growth in spending over the last 3 years relative to the previous period
  • A significant proportion of recent income was derived from major grant makers including the Government
  • The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Regulatory & Governance issues to consider:

  • There are 16 trustees whereas the Charities Commission recommends a maximum of 12

Financial issues to consider:

  • Liquidity appeared to be in excess of CC guidelines at the latest year end
  • Income has been volatile and on several occasions in recent years less than spending
Established: 20 years

www.epilepsy-institute.org.uk

info@epilepsy-institute.org.uk

020 3882 9438

Charity Commission for England and WalesCompanies HouseFacebookInstagramX
UN SDGs
?

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£1,853£2,585£-732£134£3,396£3,39415.81025
31/03/22£2,394£2,267£127£156£2,712£2,63814830
31/03/21£1,226£1,999£-772£140£1,971£1,94411.7880
31/03/20£2,255£2,070£185£188£2,490£2,48314.4725
31/03/19£2,652£1,644£1,008£142£2,373£2,34517.1550
31/03/18£2,228£1,664£564£238£1,348£1,3189.560
31/03/17£1,403£1,341£62£299£795£7636.850
31/03/16£1,236£1,262£-25£205£720£6876.550
31/03/15£1,378£1,385£-6£217£746£7116.240
31/03/14£1,153£1,137£16£233£752£7177.650
31/03/13£1,141£1,115£26£243£736£6997.540
31/03/12£1,832£1,641£191£232£710£6724.940
31/03/11£1,160£1,125£36£230£519£4795.130
31/03/10£1,129£1,046£83£210£483£4405.140
31/03/09£1,072£1,083£-11£210£400£3553.940
31/03/08£1,331£1,352£-21£222£411£335360
31/03/07£642£607£35£112£432£2575.140
31/03/06£683£659£25£0£0£0n/a00
31/03/05£504£498£6£0£0£0n/a00

Financial Ratios
Fundraising Costs/Relevant Income: 10.3%
Fundraising Costs/Total Spending: 6.7%
Senior Staff Costs/Total Spending: 4%
Highest pay band: £80,000-£90,000
Liabilities/Assets: 63%
Liabilities/Income: 311%
Unrestricted Funds/Total Funds: 100%
Reserves/Spending: 15.8 months
Net Current Assets/Spending: 12 months
Quick Ratio: 1.2
Asset Split ?
What it does
  • The Advancement Of Health Or Saving Of Lives
Who works here?
  • 10 employees
  • 25 volunteers
Who it helps
  • Children/Young People
  • Elderly/Old People
  • People With Disabilities
  • The General Public/Mankind
How it operates
  • Makes Grants to Organisations
  • Sponsors or undertakes research
Where it operates
  • Throughout England And Wales,

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations
Amount When
Months
To be used for
Garfield Weston Foundation - Main Grants award
£50,000 21/05/2021
Shape Epilepsy Research Network
RS Macdonald Charitable Trust - DNM1 Epileptic Encephalopathy - mechanism and therapy
£38,600 23/11/2020
Requesting research costs for EE (Epileptic encephalopathy) which usually presents early in life, with a common feature its resistance to current antiepileptic drugs. There is an urgent need to ....more
RS Macdonald Charitable Trust - Harnessing neural network activity to stop seizure
£48,859 31/05/2017
Dr Connolly at the University of Dundee has recently discovered that brain networks can transmit warning signals to bystander cells that allows them to transiently shut down network activity. This ....more

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (16)
Current Trustees appointed
Gender Split
Based on 15/16 persons

Age Range of Trustees: 36-73
  • REBEKAH SMITH Appointed: 2023, Occupation: Deputy Chief Executive
Legal constitution
  • Charitable company registered in England & Wales on 30/10/2003, number: 1100394
  • Registered at Companies House on 21/08/2003, number: 04873718
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Volunteer management
Filing Record
19 returns made; all on time
Main office

Churchill House
Red Lion Square
London
WC1R 4SG

Objectives

1. TO PROMOTE, ENCOURAGE AND FINANCE RESEARCH INTO EPILEPSY AND ASSOCIATE DISEASES AND THEIR UNDERLYING CAUSES;2. TO PROMOTE AND IMPROVE THE TREATMENT CARE AND WELFARE OF PERSONS AFFECTED FROM EPILEPSY AND ASSOCIATED DISEASES; AND 3. TO ADVANCE THE GENERAL EDUCATION AND UNDERSTANDING OF THE PUBLIC CONCERNING THE NATURE AND CAUSES OF EPILEPSY AND ASSOCIATED DISEASES AND THE TREATMENT THEREOF.

Defined Area of Benefit:

NOT DEFINED. IN PRACTICE EUROPE

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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