Finance Score: -4

Governance Score: 2

Support Score: 5

Spending falling: -1
Volatile income: -3
No PartB

Good trustee age range: +3
Mainly male board: -1

Grant maker support: +5

Overall GiG Score: 3

CHILDREN'S LIVER DISEASE FOUNDATION

The mission of the charity is to work nationally to take action against the effects of childhood liver disease by providing information, emotional support, research funds and a voice for all affected.

Analysis by Giving is Great

Positives:

The charity has received backing from several prominent grant makers recently
There have been no material income shortfalls in recent years
The Board appears to be well diversified in terms of age

Regulatory & Governance issues to consider:

The Board is predominantly male

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Spending has fallen significantly over the last 5 years relative to the previous period
Income has been volatile recently

Established: 26 years

www.childliverdisease.org

info@childliverdisease.org

01212123839

Charity Commission for England and Wales

Tweets

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22	*	£470	£508	£-38	n/a	n/a	n/a	n/a	n/a	8
31/12/21		£571	£493	£78	£49	£558	£496	12.1	9	6
31/12/20		£514	£544	£-30	£78	£475	£419	9.2	10	6
31/12/19		£853	£878	£-25	£187	£489	£345	4.7	13	10
31/12/18		£764	£757	£7	£134	£507	£370	5.9	12	10
31/12/17		£913	£848	£65	£202	£511	£385	5.5	13	0
31/12/16?		£554	£639	£-85	£245	£520	£453	8.5	14	0
31/03/15		£837	£1,082	£-245	£309	£770	£691	7.7	13	0
31/03/14		£829	£1,052	£-224	£211	£1,005	£912	10.4	9	0
31/03/13		£1,657	£911	£746	£219	£1,239	£1,115	14.7	7	0
31/03/12		£649	£789	£-140	£199	£470	£311	4.7	8	0
31/03/11		£857	£994	£-137	£218	£591	£478	5.8	7	0
31/03/10		£670	£638	£32	£178	£728	£518	9.8	7	0
31/03/09		£872	£824	£49	£196	£690	£467	6.8	8	0
31/03/08		£899	£899	£0	£165	£634	£291	3.9	10	0
31/03/07	*	£951	£728	£223	£186	£627	£351	5.8	10	0
31/03/06		£827	£839	£-12	£0	£0	£0	n/a	0	0
31/03/05		£649	£709	£-60	£0	£0	£0	n/a	0	0
31/03/04		£624	£709	£-85	£0	£0	£0	n/a	0	0

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Highest pay bracket: less than £60,000

Listed activities

The Advancement Of Health Or Saving Of Lives

How it operates

Provides advocacy/advice/information
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Scotland, Throughout England And Wales,

Who it helps

Children/Young People

Who works here?

Unknown number of employees
8 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

BBC Children in Need	£119,100
Garfield Weston Foundation	£10,000
Halifax Foundation for Northern Ireland	£5,000
Masonic Trust	£500

Specific Donations

Amount	When Months	To be used for
Halifax Foundation for Northern Ireland - Provision of information and support to children and families affected by Childhood Liver Disease in Northern Ireland
£5,000	03/08/2023	Towards costs of providing their Information and Support service to 250 sufferers of Children's Liver Disease in NI.
Masonic Trust - MCF Matched Funding
£500	05/12/2022	Unrestricted matched funding in partnership with the local masonic province
BBC Children in Need - Grant to Children's Liver Disease Foundation
£90,302	10/08/2021	This project will deliver a range of online 121 and group support to children and young people with liver disease across the UK. The activities will result improved relationships with families, ....more This project will deliver a range of online 121 and group support to children and young people with liver disease across the UK. The activities will result improved relationships with families, improved wellbeing and improved educational attainment
BBC Children in Need - Grant to Children's Liver Disease Foundation
£28,798	19/11/2019 36	This project offers one to one and online support for 1,455 11-18 year olds who are experiencing a liver disease. The support will reduce young people's social isolation, increase resilsence and ....more This project offers one to one and online support for 1,455 11-18 year olds who are experiencing a liver disease. The support will reduce young people's social isolation, increase resilsence and independence.
Garfield Weston Foundation - Main Grants award
£10,000	10/07/2019	Family Support Programme
BBC Children in Need - Grant to Children's Liver Disease Foundation
£91,680	02/03/2018 36	This project is a national programme providing a range of activities as well as ongoing support for children diagnosed with liver disease. The project aims to reduce isolation, improve attainment and ....more This project is a national programme providing a range of activities as well as ongoing support for children diagnosed with liver disease. The project aims to reduce isolation, improve attainment and improve wellbeing.

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (7)

Current Trustees appointed

Gender Split

Based on 6/7 persons

Age Range of Trustees: 41-75

GEORGINA CATT Appointed: 2013, Occupation: Collection Manager, Li.Ter Ltd

JOEL RALPH GLOVER Appointed: 2019, Occupation: Accountant, Other trusteeship: WARREN HOUSE GROUP AT DARTINGTON,

MAIRI EVERARD Appointed: 2005, Occupation: Fieldwork Manager

PHILIP DAVID ORME Appointed: 2019, Occupation: Chairman

PROFESSOR JAMES MAX NEUBERGER Appointed: 2019, Occupation: Medical Practioner, Other trusteeship: TRANSPLANT SPORT UK,

PROFESSOR RICHARD JOHN THOMPSON Appointed: 2023, Occupation: University Professor And Medical Doctor

STEPHEN NORMAN GAW Appointed: 2022, Occupation: Chartered Accountant

Legal constitution

Charitable company registered in England & Wales on 09/01/1998, number: 1067331
Registered at Companies House on 09/09/1997, number: 03431169

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Complaints handling
Conflicting interests
Investment
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

19 returns made; AR22: 49 days late, AR07: 2 days late,

Main office

Crowe Uk Llp
Black Country House
Rounds Green Road
OLDBURY
West Midlands
B69 2DG

Objectives

1) TO UNDERTAKE AND PROMOTE MEDICAL AND SCIENTIFIC RESEARCH RELATING TO PAEDIATRIC LIVER DISORDERS AND SUBJECTS RELATIVE THERETO.2) TO ADVANCE PUBLIC EDUCATION AND AWARENESS OF PAEDIATRIC LIVER DISEASES AND DISORDERS, THEIR CAUSES, DIAGNOSES AND TREATMENT.3) TO PROMOTE HEALTH EDUCATION IN SUBJECTS RELATING TO THE PEADATRIC LIVER.4) TO PROMOTE SUCH RESEARCH AS IS MENTIONED IN CLAUSE 3(A). FOR FURTHER INFORMATION PLEASE SEE CLAUSE 3.

Defined Area of Benefit:

NOT DEFINED

Data Sources