Overall GiG Score: 17 ?
Finance Score: -1
Governance Score: 8
Support Score: 10
  • Liabilities <10%: +3
  • Large legacies income: +1
  • Multiple Deficits: -2
  • Fundraising costs high: -3
  • 12+ Trustees: -1
  • Good trustee age range: +3
  • Dynamic board: +3
  • Gender balanced board: +3
  • Grant maker support: +10

ACTION FOR ME 

Action for M.E.’s mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and ultimately a cure.
Analysis by Giving is Great

Positives:

  • The charity has received backing from multiple prominent grant makers, including a Community Foundation, recently
  • This charity has a robust balance sheet
  • This charity has received considerable income from legacies in recent years
  • Spending has increased over the last 3 years relative to the previous period
  • The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition

Regulatory & Governance issues to consider:

  • There are 14 trustees whereas the Charities Commission recommends a maximum of 12

Financial issues to consider:

  • On several occasions in recent years income has been less than spending
  • Fundraising costs are high relative to funds raised
Established: 30 years

www.actionforme.org.uk

kate@actionforme.org.uk

01179279551

Charity Commission for England and WalesCompanies HouseFacebookInstagramXYouTube
UN SDGs
?

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£1,123£1,795£-671£281£1,380£1,2078.14063
31/03/22£2,498£1,326£1,172£243£2,055£1,80316.32950
31/03/21£1,192£833£360£116£886£6088.81970
31/03/20£950£986£-36£141£526£3103.82135
31/03/19£1,113£1,277£-164£270£568£3643.41960
31/03/18£1,269£1,047£222£231£733£4995.7170
31/03/17£682£741£-59£182£511£3986.5130
31/03/16£1,013£816£197£161£570£4336.4120
31/03/15£970£750£221£196£373£1091.7100
31/03/14£669£766£-97£203£153£651120
31/03/13£753£891£-138£329£250£1882.5170
31/03/12£689£890£-201£281£388£3124.2170
31/03/11£1,124£904£220£281£589£5287160
31/03/10£1,031£1,013£18£274£369£2372.8150
31/03/09£914£844£70£274£350£2383.4150
31/03/08£949£907£42£255£281£2182.9190
31/03/07£693£826£-132£329£239£2213.2180
31/03/06£956£808£148£0£0£0n/a00
31/03/05£782£692£90£0£0£0n/a00
31/03/04*£766£904£-138£0£0£0n/a00

Financial Ratios
Fundraising Costs/Relevant Income: 29.5%
Fundraising Costs/Total Spending: 15.7%
Senior Staff Costs/Total Spending: 11%
Highest pay band: £100,000-£110,000
Liabilities/Assets: 7%
Liabilities/Income: 10%
Unrestricted Funds/Total Funds: 87%
Reserves/Spending: 8.1 months
Net Current Assets/Spending: 9 months
Quick Ratio: 11.7
Asset Split ?
What it does
  • Disability
  • Education/Training
  • General Charitable Purposes
  • Other Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • The Prevention Or Relief Of Poverty
Who works here?
  • 40 employees
  • 63 volunteers
Who it helps
  • Children/Young People
  • Elderly/Old People
  • Other Defined Groups
  • People With Disabilities
  • The General Public/Mankind
How it operates
  • Acts as an umbrella or resource body
  • Makes Grants to Organisations
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
National Lottery Community Fund£236,211
Masonic Trust£59,610
Garfield Weston Foundation£55,000
BBC Children in Need£26,219
Specific Donations
Amount When
Months
To be used for
National Lottery Community Fund - Young People's ME Counselling
£226,211 29/09/2023
The funding will be used to deliver free counselling sessions to young people aged 13-18 with chronic fatigue syndrome or Myalgic Encephalomyelitis (M.E.). The project aims to support people to ....more
Garfield Weston Foundation - Main Grants award
£30,000 18/03/2022
End the ignorance, injustice and neglect experienced by people with M.E.
National Lottery Community Fund - Information Support and Advocacy Service
£10,000 18/02/2022
The funding will be used to continue to provide the Information Support and Advocacy Service (ISA) for people living with M.E . The project aims to ensure they have an increased understanding of ....more
Barnwood Trust - Organisational and Groups Funding
£4,000 13/04/2021
Service costs
Garfield Weston Foundation - Main Grants award
£25,000 12/06/2020
Crisis support and advocacy: safeguarding people with M.E. and saving lives
BBC Children in Need - Grant to Action for M.E.
£26,219 20/03/2020
36
This project will provide a programme of workshops developed by and for children and young people with M.E. This will increase emotional wellbeing, positive empowerment and increase postive ....more
Masonic Trust - MCF Large Grant
£59,610 10/02/2020
Grant to support children and young people with M.E. and their families through funding a Family Support Worker.
Garfield Weston Foundation - Main Grants award
£25,000 07/03/2019
Reducing isolation and transforming lives of children and adults with M.E.
National Lottery Community Fund - Educate M.E.
£9,966 30/01/2018
12
This group provides support for individuals and families across the UK affected by M.E/Chronic Fatigue Syndrome. This project will allow the group to set up partnership steering groups in four ....more
Henry Smith Charity - Grant to Action for M.E.
£60,000 07/12/2017
24
towards two years' running costs of a project providing support and care to individuals with M.E. in the Midlands and the South West
National Lottery Community Fund - Support M.E. - Children's Services
£9,260 06/09/2017
12
The funding will be used by a charity to run a consultation event that will raise awareness of the needs of young people who are living with the effects of Myalgic Encephalomyelitis (M.E) or ....more
Quartet Community Foundation - Grant to Action For Me
£20,000 02/06/2016
The second year of a grant agreed by the Henry Smith Charity to develop the SEE ME project (Support, Empower and Employ people with ME).
Masonic Trust - Core funding
£5,000 20/04/2016
Provides information, support and advice for people with M.E. (Myalgic Encephalomyelitis) and raises awareness of the condition.
Lloyds Bank Foundation - Grant to Action for ME
£25,508 04/02/2015
24
Action for ME will pilot a specialist employment service to help people with ME to gain and retain employment.
Henry Smith Charity - Grant to Action for M.E.
£50,000 11/09/2014
24
towards two years' running costs of 'SEE M.E.', a National employment and support service for people with Myalgic Encephalopathy
National Lottery Community Fund - SEE M.E. (Support, Empower and Employ people with M.E.)
£10,000 21/05/2014
12
Not Available
Lloyds Bank Foundation - Grant to Action for ME
£36,500 29/03/2011
the salary and on costs of the Welfare Rights Advisor
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (14)
Current Trustees appointed
Gender Split

Age Range of Trustees: 38-69
  • JEFFREY BANKS Appointed: 2024, Occupation: Chief Executive Officer
  • ROGER SIDDLE (Chair) Appointed: 2019, Occupation: Company Director/Chair
  • ROLLO HOPE Appointed: 2022, Occupation: Civil Servant
Legal constitution
  • Charitable company registered in England & Wales on 14/04/1994, number: 1036419
  • Registered at Companies House on 10/03/1994, number: 02906840
Gift Aid
  • Registered with HMRC for Gift Aid
Event History
Policies in force
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
20 returns made; AR04: 25 days late,
Recent reorganisation events:
  • Asset transfer in from COLCHESTER M E S H GROUP on 18/03/2021
  • Asset transfer in from THE M.E. TRUST on 05/04/2022
Main office

Action for M E
42 Temple Street
Keynsham
Bristol
BS31 1EH

Objectives

THE RELIEF OF PERSONS SUFFERING FROM THE DISEASE MYALGIC ENCEPHALOMYELITIS (M.E. WHICH EXPRESSION WHERE USED IN THE ARTICLES SHALL INCLUDE CHRONIC FATIGUE SYNDROMES AND OTHER ASSOCIATED SYNDROMES) AND TO PROVIDE INFORMATION, ADVICE AND SUPPORT AND TO PROMOTE PUBLIC EDUCATION AND RESEARCH INTO THE DISEASE (PROVIDED THAT THE USEFUL RESULTS OF ANY SUCH RESEARCH ARE FULLY DISSEMINATED TO THE GENERAL PUBLIC)

Defined Area of Benefit:

NOT DEFINED

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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