Finance Score: 6
Governance Score: 9
Support Score: 7
  • Liabilities <10%: +3
  • Fundraising costs low: +3
  • Good trustee age range: +3
  • Dynamic board: +3
  • Gender balanced board: +3
  • Grant maker support: +7
Overall GiG Score: 22 ?

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION 

We help those affected by Tourette Syndrome (TS) and want people with TS to receive the practical support and social acceptance they need to help them live their lives to the full. Our 4 main goals: Raise Awareness, Provide Training & Support, Push for Health Service Improvements, Provide Ground Level Support through our helpdesk, support groups, webinars, workshops, and weekend residential events
Analysis by Giving is Great

Positives:

  • The charity has received backing from multiple prominent grant makers recently
  • This charity has a robust balance sheet
  • There have been no material income shortfalls in recent years
  • Fundraising costs are low relative to funds raised
  • The Board appears to be well diversified in terms of age and gender and dynamic in terms of composition
Established: 33 years

www.tourettes-action.org.uk

help@tourettes-action.org.uk

07443888472

Charity Commission for England and WalesCompanies HouseFacebookInstagramX

Financial Data ?

Income & Spending ?
Sources of Income ?
Y/E Income
£k
Spending
£k
Surplus/
Deficit
Fundraising
Cost £k
Total
Funds £k
Unrestricted
Funds £k
Mths
Rsrvs
Staff Volun-
teers
31/03/23£633£550£82£32£695£47510.41120
31/03/22£493£296£197n/an/an/an/an/a25
31/03/21£412£298£115n/an/an/an/an/a30
31/03/20£455£499£-44n/an/an/an/an/a20
31/03/19£407£439£-32n/an/an/an/an/a40
31/03/18*£330£389£-59£0£0£0n/a00
31/03/17*£444£381£63£0£0£0n/a00
31/03/16£397£318£79£0£0£0n/a00
31/03/15£351£331£20£0£0£0n/a00
31/03/14£311£312£-1£0£0£0n/a00
31/03/13£413£410£2£0£0£0n/a00
31/03/12£413£410£2£0£0£0n/a00
31/03/11£321£374£-53£0£0£0n/a00
31/03/10£296£293£3£0£0£0n/a00
31/03/09£185£345£-159£0£0£0n/a00
31/03/08£206£272£-66£0£0£0n/a00
31/03/07£610£172£438£38£515£51535.930
31/03/06£102£132£-29£0£0£0n/a00
31/03/05?*£94£97£-2£0£0£0n/a00
30/06/04*£139£134£5£0£0£0n/a00

Financial Ratios
Fundraising Costs/Relevant Income: 6%
Fundraising Costs/Total Spending: 5.9%
Highest pay band: Less than £60,000
Liabilities/Assets: 7%
Liabilities/Income: 8%
Unrestricted Funds/Total Funds: 68%
Reserves/Spending: 10.4 months
Net Current Assets/Spending: 15 months
Quick Ratio: 14.5
Asset Split ?
Listed activities
  • Disability
  • Education/Training
  • The Advancement Of Health Or Saving Of Lives
How it operates
  • Makes Grants to Individuals
  • Provides advocacy/advice/information
  • Provides services
  • Sponsors or undertakes research
Where it operates
  • Northern Ireland, Scotland, Throughout England And Wales,
Who it helps
  • Children/Young People
  • Other Defined Groups
  • People With Disabilities
Who works here?
  • 11 employees
  • 20 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years
Garfield Weston Foundation£50,000
National Lottery Community Fund£19,950
Masonic Trust£15,000
The Clothworkers Foundation£10,000
Specific Donations
Amount When
Months
To be used for
National Lottery Community Fund - Accredited CPD training: Improving Outcomes for People with Tourette Syndrome
£9,950 22/07/2022
The funding will be used to convert existing materials in to online accredited professional training modules to educate professionals about Tourette Syndrome. The project aims to ensure that children ....more
The Clothworkers Foundation - Grant to Wigan Workshop
£10,000 07/04/2022
installation of heaters and purchase of cabinets for a charity supporting older people in Greater Manchester
The Grocers' Charity - 2022-Tourette Syndrome Association
£5,000 16/12/2021
Towards project costs of one event where children and adults with Tourettes syndrome can meet, share experiences and understand that although they have an impairment, society disables them from ....more
Masonic Trust - MCF Small Grant
£15,000 10/11/2021
Unrestricted core funding for small charities
Garfield Weston Foundation - Main Grants award
£30,000 05/11/2021
Tourettes Action - Improving Outcomes For Children and Adults Tourette Syndrome (spotlight on TICfest)
Sir Jules Thorn Charitable Trust - Tourette Association (UK) Association - 19/05/21
£1,250 02/06/2021
TEENfest
Garfield Weston Foundation - Main Grants award
£20,000 17/07/2020
Tourettes Action - Supporting People With Tourette Syndrome
National Lottery Community Fund - Tourettes Champions
£10,000 09/05/2019
12
The organisation will run workshops and training days to support people with Tourettes with the aim of addressing social isolation, improving social networks and increasing awareness across ....more
National Lottery Community Fund - Challenging Tourette Syndrome
£354,346 07/03/2019
60
The project will use funding to run structured weekend events focussing on young adults with Tourette syndrome and their carer/partner where they feel safe and accepted. The project will also run ....more
National Lottery Community Fund - TicFest Wales
£7,500 06/11/2018
12
TicFest Wales
Garfield Weston Foundation - Main Grants award
£20,000 11/10/2018
Tourettes Action - Enabling People With Tourette Syndrome To Live Their Lives To The Full
BBC Children in Need - Grant to Tourette Syndrome (UK) Association trading as Tourettes Action
£90,000 27/06/2018
36
This project will provide family respite camps for children and young people with Tourette Syndrome. Children and young people will make new friends, become more resilient and confident.
National Lottery Community Fund - Improving Outcomes for Children with Tourette Syndrome
£10,000 15/03/2017
12
This is a project by a charity based in Farnborough, benefiting people throughout the UK. They will use the funding to run three regional training workshops for teachers, teaching assistants and ....more
Masonic Trust - Core funding
£3,000 19/10/2016
Offers advice and information, befriending, support groups, a helpline and online help services for people living with Tourette's Syndrome.
National Lottery Community Fund - Tourettes Self-Help in the South West of England
£147,117 05/03/2014
36
_x000B_Tourettes Self-help in the South West of England (TSH) is the rolling out and expansion of an existing Tourettes Syndrome Association (TSA) project into the South West Region. TSH will support ....more
Lloyds Bank Foundation - Grant to Tourette Syndrome
£30,000 29/03/2012
the salary of the Groups Support Officer for Kent, Surrey, Sussex and South East London including recruitment, travel, overhead and project costs
Show more rows

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (12)
Current Trustees appointed
Gender Split
Based on 11/12 persons

Age Range of Trustees: 29-70
  • EILEEN JOYCE Appointed: 2016, Occupation: Professor Of Neuropsychiatry
  • SONAL DHULASHIA Appointed: 2022, Occupation: Head Of Inclusion, Diversity And Wellbeing
Legal constitution
  • Charitable company registered in England & Wales on 24/06/1991, number: 1003317
  • Registered at Companies House on 23/05/1991, number: 02613993
Gift Aid
  • Registered with HMRC for Gift Aid
Policies in force
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Filing Record
20 returns made; AR18: 29 days late, AR17: 1 days late, AR05: 29 days late, AR04: 67 days late,
Main office

Tourettes Action
The Meads Business Centre
19 Kingsmead
Farnborough
GU14 7SR

Objectives

RELIEF OF PERSONS SUFFERING FROM THE NEUROLOGICAL DISORDER KNOWN AS GILLES DE LA TOURETTE SYNDROME.

Defined Area of Benefit:

NOT DEFINED

Data Sources

Charity Commission for England and Wales
360 Giving
CharityBase
Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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