Finance Score: 1

Governance Score: 6

Support Score: 7

Large legacies income: +1

Dynamic board: +3
Gender balanced board: +3

Grant maker support: +7

Overall GiG Score: 14

MOTOR NEURONE DISEASE ASSOCIATION

The MND Association is the only national charity in England, Wales and Northern Ireland dedicated to improving care and support for people affected by MND, funding and improving research, and campaigning and raising awareness so that the needs of people with MND are addressed by society. Visit www.mndassociation.org

Analysis by Giving is Great

Positives:

The charity has received backing from multiple prominent grant makers recently
This charity has received considerable income from legacies in recent years
There have been no material income shortfalls in recent years
The Board appears to be well diversified in terms of gender and dynamic in terms of composition

Established: 38 years

www.mndassociation.org

enquiries@mndassociation.org

01604 250505

Charity Commission for England and Wales

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E		Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
31/12/22		£30,045	£22,796	£7,249	£3,853	£33,214	£27,635	14.5	204	1,190
31/12/21		£28,943	£18,063	£10,880	£3,131	£25,974	£20,935	13.9	180	1,190
31/12/20		£19,911	£15,583	£4,328	£2,730	£15,132	£12,772	9.8	178	1,220
31/12/19		£18,633	£18,117	£516	£2,848	£10,764	£8,690	5.8	186	1,220
31/12/18		£18,744	£18,664	£80	£3,961	£10,161	£8,397	5.4	198	50
31/12/17		£18,955	£19,149	£-194	£3,888	£10,201	£8,524	5.3	190	0
31/12/16?	*	£17,391	£17,180	£211	£3,534	£10,141	£8,318	5.8	170	0
31/01/15		£25,278	£16,344	£8,934	£3,749	£17,827	£15,917	11.7	151	0
31/01/14		£16,756	£13,511	£3,245	£3,177	£8,900	£7,432	6.6	140	0
31/01/13		£13,270	£12,907	£363	£2,886	£5,655	£4,733	4.4	136	0
31/01/12		£12,715	£14,736	£-2,021	£2,932	£5,291	£4,302	3.5	149	0
31/01/11		£13,044	£15,083	£-2,039	£3,328	£7,214	£5,095	4.1	145	0
31/01/10		£11,690	£13,744	£-2,054	£3,061	£9,180	£6,365	5.6	134	0
31/01/09		£14,189	£11,970	£2,219	£2,787	£11,238	£7,850	7.9	121	0
31/01/08		£12,612	£9,961	£2,651	£2,119	£9,218	£7,817	9.4	106	0
31/01/07		£11,038	£9,331	£1,707	£2,180	£6,566	£6,171	7.9	98	0
31/01/06		£8,945	£8,330	£615	£0	£0	£0	n/a	0	0
31/01/05		£8,015	£7,347	£668	£0	£0	£0	n/a	0	0
31/01/04		£7,067	£6,847	£220	£0	£0	£0	n/a	0	0

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Financial Ratios

Fundraising Costs/Relevant Income: 13.6%
Fundraising Costs/Total Spending: 16.9%
Senior Staff Costs/Total Spending: 4%
Highest pay band: £100,000-£110,000
Liabilities/Assets: 35%
Liabilities/Income: 60%
Unrestricted Funds/Total Funds: 83%
Reserves/Spending: 14.5 months
Net Current Assets/Spending: 17 months
Quick Ratio: 1.3

Asset Split ?

Listed activities

Disability

How it operates

Makes Grants to Individuals
Makes Grants to Organisations
Provides advocacy/advice/information
Provides human resources
Provides services
Sponsors or undertakes research

Where it operates

Northern Ireland, Throughout England And Wales,

Who it helps

People With Disabilities

Who works here?

204 employees
1,190 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

Wolfson Foundation	£200,000
Garfield Weston Foundation	£75,000
National Lottery Community Fund	£12,500
Co-Operative Group	£4,364

Specific Donations

Amount	When Months	To be used for
National Lottery Community Fund - First contact therapy for local people with MND
£10,000	26/05/2023	The funding will be used to provide first contact therapy treatments for people living with and affected by motor neurone disease. This will relieve symptoms pain and stress reduce reliance on ....more The funding will be used to provide first contact therapy treatments for people living with and affected by motor neurone disease. This will relieve symptoms pain and stress reduce reliance on medication whilst encouraging them to join the local support network via the organisation. The project aims to improve wellbeing and quality of life whilst also building support networks.
Foundation Scotland - Grant to Motor Neurone Disease Association
£1,000	30/11/2022	Donation from The Robert and Fiona Laing Fund - To support Kevin Sinfield's - Ultra 7 in 7 Challenge
CareTech foundation - Match Funding Grant
£195	28/09/2022	Match funding Grant awarded to registered charity in the UK to support the applicant's fundraising efforts.
Quartet Community Foundation - Grant to Motor Neurone Disease Association
£250	30/08/2022	As requested by the donor towards support for people with motor neurone disease.
Wolfson Foundation - Grant to Motor Neurone Disease Association
£75,000	08/06/2022	Purchase of communication aids and wheelchair adaptive equipment for people with MND across the UK
Foundation Scotland - Grant to Motor Neurone Disease Association
£500	21/06/2021	Donation from Alison Findlay
Masonic Trust - MCF Matched Funding
£500	26/01/2021	Unrestricted matched funding in partnership with the local masonic province
Wolfson Foundation - Grant to Motor Neurone Disease Association
£125,000	09/12/2020	WF Covid-19 Support Fund
Foundation Scotland - Grant to Motor Neurone Disease Association
£500	09/12/2020	Donation from Alison Findlay
Sussex Community Foundation - Grant to MND Association
£2,500	17/11/2020	Funding was provided towards the cost of home adaptations for an individual with MND.
Garfield Weston Foundation - Main Grants award
£75,000	06/11/2020	MND Association Research Programme - Accelerating the Search for New Treatments for MND
Co-Operative Group - Grant to Motor Neurone Disease Association
£4,364	24/10/2020	We would like to provide voice banking, so that people with motor neurone disease (MND) can have access to their own sound.
Sir George Martin Trust - Grant to Motor Neurone Disease Association - West Yorkshire Branch
£2,525	28/09/2020	Core costs for Advancement of Health/Saving Lives
National Lottery Community Fund - social mobility
£2,500	03/04/2020 11	The funding will be used to provide transport for people living with Motor Neurone Disease. The project aims to bring people together and provide support to families.
Foundation Scotland - Grant to Motor Neurone Disease Association
£50	09/01/2020	General charitable donation from Alison Findlay 096206
Wolfson Foundation - Grant to Motor Neurone Disease Association
£750,000	05/12/2018	Lady Edith Wolfson Non-Clinical Fellowships
Wolfson Foundation - Grant to Motor Neurone Disease Association
£150,000	16/06/2017	Communication aids and wheelchair adaptions for people across the UK
Essex Community Foundation - Grant to Motor Neurone Disease Association
£2,566	15/03/2017	To support the costs of MND research
Henry Smith Charity - Grant to Motor Neurone Disease Association
£75,000	14/03/2012	towards the purchase of 22 Diaphragm Pacing Units as part of a project to explore whether a diaphragm pacing system delays the onset of respiratory failure in patients with Motor Neurone Disease

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (11)

Current Trustees appointed

Gender Split

Based on 10/11 persons

Age Range of Trustees: 52-77

CATHERINE KNIGHTS Appointed: 2019, Occupation: Retired

DEBRA MARTIN Appointed: 2021, Occupation: Nhs General Manager

DR JOHN EALING Appointed: 2023, Occupation: Doctor

DR USMAN KHAN Appointed: 2021, Occupation: Director

ELIZABETH ELLIS Appointed: 2021, Occupation: Company Director

HAZEL CARTER Appointed: 2023, Occupation: Retired

IAN LEV Appointed: 2022, Occupation: Retired

JAMES MARSHALL Appointed: 2021, Occupation: Retired, Other trusteeship: THE TRIANGLE TRUST 1949 FUND,

KIRRIE TODD Appointed: 2022, Occupation: Head Of Communications

SHAUN GERARD MC GEE Appointed: 2020

SIMON CROXFORD Appointed: 2022, Occupation: Solicitor

Legal constitution

Charitable company registered in England & Wales on 14/05/1986, number: 294354
Registered at Companies House on 04/04/1986, number: 02007023

Gift Aid

Registered with HMRC for Gift Aid

Event History

14/09/2020 - Asset transfer in from JR AND SA BROOKS CHARITABLE TRUST
13/05/2022 - Asset transfer in from ROTARY CLUB OF RICKMANSWORTH TRUST FUND
24/06/2022 - Asset transfer in from SOUTH MONTGOMERYSHIRE VOLUNTEER BUREAU LIMITED
09/08/2022 - Asset transfer in from F.A.B.L.E (FOR A BETTER LIFE WITH EPILEPSY)
23/08/2022 - Asset transfer in from MARK ARMITAGE CHARITABLE TRUST
08/08/2023 - Asset transfer in from INNER WHEEL CLUB OF CLIFTON BENEVOLENT FUND

Other Regulators

Care Quality Commission

Policies in force

Complaints handling
Conflicting interests
Investment
Paying staff
Risk management
Safeguarding vulnerable beneficiaries
Volunteer management

Filing Record

19 returns made; AR16: 34 days late,

Recent reorganisation events:

Asset transfer in from JR AND SA BROOKS CHARITABLE TRUST on 14/09/2020
Asset transfer in from ROTARY CLUB OF RICKMANSWORTH TRUST FUND on 13/05/2022
Asset transfer in from SOUTH MONTGOMERYSHIRE VOLUNTEER BUREAU LIMITED on 24/06/2022
Asset transfer in from F.A.B.L.E (FOR A BETTER LIFE WITH EPILEPSY) on 09/08/2022
Asset transfer in from MARK ARMITAGE CHARITABLE TRUST on 23/08/2022

....more

Main office

Motor Neurone Disease Association
Francis Crick House
6 Summerhouse Road
Moulton Park Industrial Estate
NORTHAMPTON
NN3 6BJ

Objectives

(A) THE RELIEF OF PERSONS WHO ARE, OR WHO ARE SUSPECTED OF BEING, AFFECTED BY MOTOR NEURONE DISEASE AND ITS ASSOCIATED CONDITIONS (THE BENEFICIARIES) BY SEEKING TO ENSURE THAT SUCH PERSONS AND THEIR FAMILIES AND CARERS RECEIVE SUCH HELP AND ASSISTANCE AS IS CALCULATED TO RELIEVE THEIR NEED.(B) TO COMMISSION, UNDERTAKE, PROMOTE, MONITOR AND MANAGE RESEARCH INTO ALL ASPECTS OF MOTOR NEURONE DISEASE AND ITS ASSOCIATED CONDITIONS AND CAUSES AND WORK TOWARDS THEIR PREVENTION AND CURE AND TO PUBLISH AND DISSEMINATE THE USEFUL RESULTS FOR THE BENEFIT OF THE PUBLIC.

Defined Area of Benefit:

NOT DEFINED

Data Sources