Finance Score: -2

Governance Score: 2

Support Score: 5

Deficit latest year: -2
No PartB

No conflicts policy: -1
Gender balanced board: +3

Large volunteers +3
Grant maker support: +2

Overall GiG Score: 5

ACHALASIA ACTION

Holding support meetings for those living with achalasia.Giving information and support to those interested in achalasiaSupporting those involved in research into achalasia

Analysis by Giving is Great

Positives:

This charity has been successful in attracting volunteers relative to its size
A significant proportion of recent income was derived from major grant makers
The Board appears to be well diversified in terms of gender

Regulatory & Governance issues to consider:

This charity does not have a Conflict of Interests policy

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data
Income was significantly lower than spending in the latest year

Established: 4 years

www.achalasia-action.org

info@achalasia-action.org

07969498857

Charity Commission for England and Wales

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Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income	Spending	Surplus/ Deficit	Volun- teers
31/03/23	£4,473	£7,752	£-3,279	3
31/03/22	£3,563	£3,444	£119	6
31/03/21	£22,057	£8,137	£13,920	5

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Highest pay bracket: less than £60,000

Listed activities

Disability
Education/Training
The Advancement Of Health Or Saving Of Lives

How it operates

Provides services
Sponsors or undertakes research

Where it operates

Throughout England And Wales,

Who it helps

People With Disabilities
The General Public/Mankind

Who works here?

Unknown number of employees
3 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Specific Donations

Amount	When Months	To be used for
DCMS - Coronavirus Community Support Fund
£9,600	28/08/2020	"The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to ....more "The fund aims to:1) To reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services.2) To ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations."
The Foyle Foundation - Small Grants
£6,300	29/07/2020	as a general donation towards the work of the new charity for a rare condition (Achalasia) over the next 12 months

Data sourced from Donors via 360 Giving

How is it governed?

Trustees (8)

Current Trustees appointed

Gender Split

Based on 7/8 persons

AMANDA LADELL Appointed: 2020, Other trusteeship: WINCHMORE STRING ORCHESTRA,

ALAN MOSS Appointed: 2020

ANDREW WILLIAMS Appointed: 2020

GAVIN NASH Appointed: 2020

JAYNE ELIZABETH FITZGERALD Appointed: 2021

MAJID HASHEMI FRCS Appointed: 2020

NEIL HAM Appointed: 2020

SILVIA DAVEY (Chair) Appointed: 2020

Legal constitution

Charity registered in England & Wales on 15/01/2020, number: 1187367

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Investing charity funds policy and procedures
Trustee expenses policy and procedures

Filing Record

3 returns made; all on time

Main office

40 ORPINGTON ROAD
LONDON
N21 3PG

Objectives

THE OBJECTS OF THE CIO ARE: A) TO ADVANCE EDUCATION FOR THE PUBLIC BENEFIT OF ACHALASIA AND ASSOCIATED CONDITIONS B) TO PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF PERSONS WITH ACHALASIA INCLUDING THEIR FRIENDS AND FAMILIES BY SUPPORTING RESEARCH INTO ACHALASIA. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.

Data Sources