GENETIC ALLIANCE UK LTD

The project will support families whose children are born with a syndrome without a name (SWAN) and provide greater access to local events and face-to-face support. The project aims to provide more opportunities to build new relationships as well as ....more

The project will support families whose children are born with a syndrome without a name (SWAN) and provide greater access to local events and face-to-face support. The project aims to provide more opportunities to build new relationships as well as reducing isolation and loneliness.

Purchase three laptops and screens for communications team for a charity supporting people with disabilities in England

Rebuilding Mental Wellbeing

The project will support and improve outcomes for those affected by genetic/rare/undiagnosed conditions. They work with organisations and individuals providing advocacy advice and information with the aim of improving physical wellbeing.

Genetic Alliance UK Ltd has received a £162821 grant over 3 years to expand the SWAN UK project to the Cardiff area and beyond. They will work with families of children with undiagnosed genetic conditions to grow their support networks. Initially ....more

Genetic Alliance UK Ltd has received a £162821 grant over 3 years to expand the SWAN UK project to the Cardiff area and beyond. They will work with families of children with undiagnosed genetic conditions to grow their support networks. Initially this will be through an online community but then developing further local networks to improve the knowledge resilience and emotional health and wellbeing of families. Mae Genetic Alliance UK Ltd wedi derbyn grant o £162821 dros dair blynedd i ehangu prosiect SWAN UK i ardal Caerdydd a thu hwnt. Byddant yn gweithio gyda theuluoedd plant sydd â chyflyrau genetig heb ddiagnosis i dyfu eu rhwydweithiau cymorth. I ddechrau bydd hyn trwy gymuned ar-lein ond yna datblygu rhwydweithiau lleol pellach i wella gwybodaeth gwytnwch ac iechyd a lles emosiynol teuluoedd.

£25,700 towards costs as outlined in your application, but excluding management and overhead costs.

The funding will be used to hold an event and day trips for dads of children living with disabilities. The project will bring people together to develop relationships and a network for ongoing support.

This group will use the funding to promote and distribute their early intervention toolkit providing support to families affected by rare and undiagnosed genetic conditions. The group will also run four regional roadshows delivered in Inverness, ....more

This group will use the funding to promote and distribute their early intervention toolkit providing support to families affected by rare and undiagnosed genetic conditions. The group will also run four regional roadshows delivered in Inverness, Aberdeen, Dundee and Stirling.

The aim of this England wide development project is to provide support for 3,500 families with children who have undiagnosed genetic conditions. Most of these children have physical and/or learning disabilities and many have severe and complex ....more

The aim of this England wide development project is to provide support for 3,500 families with children who have undiagnosed genetic conditions. Most of these children have physical and/or learning disabilities and many have severe and complex medical needs with as many as 50 per cent of children having genetic tests through the NHS not receiving a definite diagnosis for their condition.

This pilot project in six areas of England aims to develop information and support networks for families of children with undiagnosed genetic conditions. Parent and care volunteers will receive training to establish support groups and organise ....more

This pilot project in six areas of England aims to develop information and support networks for families of children with undiagnosed genetic conditions. Parent and care volunteers will receive training to establish support groups and organise events to bring families together in a social setting. Volunteers will also speak to local clinics, health services and service providers about undiagnosed genetic conditions and their local network, to raise awareness and encourage referrals to the project.

This project provides support for families across England with children with undiagnosed genetic conditions. The project will develop a hub for information and support, with a focus on mutual encouragement, offering families opportunities to share ....more

This project provides support for families across England with children with undiagnosed genetic conditions. The project will develop a hub for information and support, with a focus on mutual encouragement, offering families opportunities to share knowledge, experiences, difficulties and solutions. Families will be offered opportunities to share knowledge, experiences, difficulties and solutions through a newsletter, an annual meeting and by linking families for mutual support.